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NATIONAL REAL-LIFE STUDY OF LYMPHOMAS

France, 2018 - 2028
Reference ID
FRESH-PEF73987-en
Producer(s)
Hervé;GHESQUIERES, Fanny;CHERBLANC
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
May 07, 2026
Page views
42
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Quality standards
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF73987-en
    Title

    NATIONAL REAL-LIFE STUDY OF LYMPHOMAS
    Abbreviation or Acronym

    REALYSA
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Paraclinical data (non-biological)','Paraclinical data (non-biological) : Imaging','Biological data','Socio-demographic data','Participant-reported health data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Hematology health theme
    Neoplasms of haematopoietic or lymphoid tissues cim-11
    Socio-demographic and economic determinants health determinant
    Behavioral determinants health determinant
    Behavioral determinants: Eating habits health determinant
    Environmental determinants health determinant
    Healthcare system determinants: Use of care health determinant
    Healthcare system determinants: Access to care health determinant
    Socio-demographic and economic determinants: Employment health determinant
    Healthcare system determinants health determinant
    Keywords
    Prognostic factors Therapeutic management Biobanks Prospective study Multicentric Environmental exposure Occupational exposure Care pathway Pesticides

    Coverage

    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Young Adult (19 to 24 years)","concept":{"vocab":"MeSH","vocabURI":"D055815"}},{"value":"Adult (25 to 44 years)","concept":{"vocab":"MeSH","vocabURI":"D000328"}},{"value":"Middle Aged (45 to 64 years)","concept":{"vocab":"MeSH","vocabURI":"D008875"}},{"value":"Aged (65 to 79 years)","concept":{"vocab":"MeSH","vocabURI":"D000368"}},{"value":"Aged, 80 and over (80 years and more)","concept":{"vocab":"MeSH","vocabURI":"D000369"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Hervé;GHESQUIERES
    Fanny;CHERBLANC
    Producers
    Name Role
    HOSPICES CIVILS DE LYON (HCL) sponsor
    LYSARC - THE LYMPHOMA ACADEMIC RESEARCH ORGANISATION sponsor
    Other Identifications/Acknowledgments
    Name
    Interlymph

    Study authorization

    Agency
    Agency name
    CNIL
    CPP

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2018-01-01 2028-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"SelfAdministeredQuestionnaire","vocab":"CESSDA"},"value":"Self-administered questionnaire"}
    • {"concept":{"vocabURI":"Interview","vocab":"CESSDA"},"value":"Interview with the participant (including clinical)"}

    Quality standards

    Quality standards
    Standard
    ['WHO 2016 diagnostic classification, MEDDRA extract for adverse events']
    Other quality statement

    ['Data validation within eCRF (queries), consistency test in SAS, quality control by sampling with comparison to the source file']

    Data Access

    Access conditions

    All projects must be validated by the REALYSA Scientific Committee and approved by the LYSA Board, on the basis of a synopsis (available on request). The REALYSA Scientific Committee meets quarterly. A contract will be drawn up for each project.
    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}

    Contacts

    Contacts
    Name Email
    Fanny;CHERBLANC fanny.cherblanc@lysarc.org
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