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Longitudinal study of the association between pain assessment difficulties for caregivers and anxiety in children with sickle cell disease at the beginning of hospitalization.

France, 2009 - 2011
Reference ID
FRESH-PEF73338-en
Producer(s)
Nathalie;DUPARC-ALEGRIA, Eliane;JOSSET-RAFFET
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
Page views
40
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF73338-en
    Title

    Longitudinal study of the association between pain assessment difficulties for caregivers and anxiety in children with sickle cell disease at the beginning of hospitalization.
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Hematology health theme
    Sickle cell disorders or other haemoglobinopathies cim-11
    Socio-demographic and economic determinants health determinant
    Biological determinants: Genetic predisposition health determinant
    Healthcare system determinants: Access to care health determinant
    Biological determinants health determinant
    Keywords
    pain assessment sickle cell disease anxiety child

    Coverage

    Geographic Coverage

    ['Ile-de-France']
    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Child (6 to 12 years)","concept":{"vocab":"MeSH","vocabURI":"D002648"}},{"value":"Adolescent (13 to 18 years)","concept":{"vocab":"MeSH","vocabURI":"D000293"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Nathalie;DUPARC-ALEGRIA
    Eliane;JOSSET-RAFFET
    Producers
    Name Role
    ASSISTANCE PUBLIQUE HOPITAUX DE PARIS (AP-HP) sponsor

    Study authorization

    Agency
    Agency name
    CNIL

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2009-01-01 2011-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Transcription","vocab":"CESSDA"},"value":"Converting or copying information into a structured record"}
    • {"concept":{"vocabURI":"Interview","vocab":"CESSDA"},"value":"Interview with the participant (including clinical)"}

    Data Access

    Access conditions

    Contact the principal investigator
    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}

    Contacts

    Contacts
    Name Email
    Nathalie;DUPARC-ALEGRIA nathalie.duparc@aphp.fr
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