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Inflammatory Diseases in Paediatric Rheumatology

France, 2007 - 3000
Reference ID
FRESH-PEF60138-en
Producer(s)
Pierre;QUARTIER-DIT-MAIRE
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
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35
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Access policy
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF60138-en
    Title

    Inflammatory Diseases in Paediatric Rheumatology
    Abbreviation or Acronym

    CEMARA
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Paediatrics health theme
    Rheumatology health theme
    Menopause cim-11
    Biological determinants: Genetic predisposition health determinant
    Biological determinants health determinant
    Keywords
    adverse events life-threatening sequelae embryonic/foetal impairment neoplasia Health episodes death hospitalisation

    Coverage

    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Child (6 to 12 years)","concept":{"vocab":"MeSH","vocabURI":"D002648"}},{"value":"Adolescent (13 to 18 years)","concept":{"vocab":"MeSH","vocabURI":"D000293"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"Patients included in the CEMARA database must have a diagnosis relevant to the label \"juvenile arthritis\" in the rare disease reference centre = inflammatory paediatric rheumatology diseases identified in the CEMARA thesaurus (and Orphanet thesauraus) belonging to one of the following 4 categories: juvenile idiopathic arthritis, other juvenile arthritis, paediatric autoinflammatory diseases, systemic diseases and paediatric vasculitis","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Pierre;QUARTIER-DIT-MAIRE
    Producers
    Name Role
    INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM) sponsor
    ASSISTANCE PUBLIQUE HOPITAUX DE PARIS (AP-HP) sponsor

    Study authorization

    Agency
    Agency name
    CNIL

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2007-01-01 3000-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Interview","vocab":"CESSDA"},"value":"Interview with the participant (including clinical)"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health event/mortality

    Access policy

    Completeness of Study Stored

    Data may be used by academic teams. Data may not be used by industrial teams

    Data Access

    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}
    Restrictions

    Contractual access.

    Contacts

    Contacts
    Name Email
    Pierre;QUARTIER-DIT-MAIRE pierre.quartier@aphp.fr
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