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Longitudinal Study of a Children Population With Bilateral Severe Cerebral Palsy: Incidence and Evolution of Orthopaedic Complications and Pain Related With These Complications.

France, 2009 - 3000
Reference ID
FRESH-PEF5282-en
Producer(s)
Isabelle;POIROT
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
Page views
37
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF5282-en
    Title

    Longitudinal Study of a Children Population With Bilateral Severe Cerebral Palsy: Incidence and Evolution of Orthopaedic Complications and Pain Related With These Complications.
    Abbreviation or Acronym

    Cohort CP
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Paraclinical data (non-biological)','Paraclinical data (non-biological) : Imaging']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Physical and Rehabilitation Medicine health theme
    Neurology health theme
    Cerebral palsy cim-11
    Socio-demographic and economic determinants health determinant
    Keywords
    pain child cohort orthopaedic complications epidemiology cerebral palsy

    Coverage

    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Child, Preschool (2 to 5 years)","concept":{"vocab":"MeSH","vocabURI":"D002675"}},{"value":"Child (6 to 12 years)","concept":{"vocab":"MeSH","vocabURI":"D002648"}},{"value":"Adolescent (13 to 18 years)","concept":{"vocab":"MeSH","vocabURI":"D000293"}},{"value":"Young Adult (19 to 24 years)","concept":{"vocab":"MeSH","vocabURI":"D055815"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"Children aged from 2 to 10 years at inclusion, - with bilateral cerebral palsy (Brain injury or cerebral abnormalities ocurred before 2 years of age), - Grade IV or V of the GMFCS. - nonprogressive disease","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Isabelle;POIROT
    Producers
    Name Role
    HOSPICES CIVILS DE LYON (HCL) sponsor
    Funding Agency/Sponsor
    Name
    MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES
    SOCIETE FRANCOPHONE D ETUDES ET DE RECHERCHES SUR LES HANDICAPS DE L ENFANCE (S.F.E.R.H.E)
    Other Identifications/Acknowledgments
    Name
    Investigator annual meeting during the SFERHE study days (Société Francophone d'Etude et de Recherche sur les Handicaps de l'Enfance)

    Study authorization

    Agency
    Agency name
    CNIL

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2009-01-01 3000-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Transcription","vocab":"CESSDA"},"value":"Converting or copying information into a structured record"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health event/mortality

    Data Access

    Availability Status

    {"value":"To be defined","extLink":[]}

    Contacts

    Contacts
    Name Email
    Isabelle;POIROT isabelle.poirot@chu-lyon.fr
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