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Haute Garonne register of childhood disabilities (qualified register)

France, 1986 - 3000
Reference ID
FRESH-PEF173-en
Producer(s)
Catherine;ARNAUD
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
Page views
43
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF173-en
    Title

    Haute Garonne register of childhood disabilities (qualified register)
    Abbreviation or Acronym

    RHE31
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Paraclinical data (non-biological)','Paraclinical data (non-biological) : Imaging','Paraclinical data (non-biological) : Function testing','Socio-demographic data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Paediatrics health theme
    Disorders due to substance use cim-11
    Socio-demographic and economic determinants health determinant
    Keywords
    sensory disabilities mobility pervasive developmental disorder development

    Coverage

    Geographic Coverage

    ['Occitanie']
    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Child (6 to 12 years)","concept":{"vocab":"MeSH","vocabURI":"D002648"}}],"level_type_clusion_I":"People with disabilities","level_type_clusion_other":"","clusion_I":"All children having one of the following impairment at 5 years and/or 8 years and for whom the parents (or legal representatives) reside in Haute-Garonne county at the time of regsitration : Motor impairments (including cerebral paly) Severe sensory impairments Severe intellectual disabilities Down syndroms Pervasive developmental disorders","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Catherine;ARNAUD
    Producers
    Name Role
    INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM) sponsor
    Funding Agency/Sponsor
    Name
    INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM)
    SANTE PUBLIQUE FRANCE

    Study authorization

    Agency
    Agency name
    CNIL

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    1986-01-01 3000-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Transcription","vocab":"CESSDA"},"value":"Converting or copying information into a structured record"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity

    Data Access

    Access conditions

    Access to data is possible upon a writing request submitted to the director, indicating the research objectives
    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}

    Contacts

    Contacts
    Name Email
    Catherine;ARNAUD catherine.arnaud@univ-tlse3.fr
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