Haute Garonne register of childhood disabilities (qualified register) FRESH-PEF173-en Catherine ARNAUD Haute Garonne register of childhood disabilities (qualified register) RHE31 FRESH-PEF173-en 173 FRESH-PEF173 Catherine ARNAUD INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM) Epidemiology France Portal (PEF) INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM) SANTE PUBLIQUE FRANCE null Catherine;ARNAUD sensory disabilities mobility pervasive developmental disorder development Paediatrics Disorders due to substance use Socio-demographic and economic determinants Objectives in terms of public health: 1) Monitor prevalence rates of severe childhood disabilities over time in a defined geographical area (population-based register) 2) Describe characteristics of these disabilities, medical conditions associated with the main impairment 3) Describe care, assistance and schooling of these children 3) Assist in the planning of medical and social offering suitable for such children (availability of specialized care facilities, home care and outpatient care) Research objectives : 1) Progress in the etiological knowledge and study risk factors especially perinatal risk factors 2) Assess the consequences of preventive or screening measures implemented during pregnancy 3) Describe and understand factors associated with better participation and quality of life of disabled children null France Occitanie Individuals People with disabilities Male Female Child (6 to 12 years) All children having one of the following impairment at 5 years and/or 8 years and for whom the parents (or legal representatives) reside in Haute-Garonne county at the time of regsitration : Motor impairments (including cerebral paly) Severe sensory impairments Severe intellectual disabilities Down syndroms Pervasive developmental disorders Clinical data Socio-demographic data Paraclinical data (non-biological) : Imaging Paraclinical data (non-biological) : Function testing Health event/morbidity Other Through organizations (health services or institutions schools businesses etc.) [1000-10000[ individuals Converting or copying information into a structured record Observational Study Observational Study Morbidity registry 2134 Unknown Restricted access Access to data is possible upon a writing request submitted to the director, indicating the research objectives Access on specific project only