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National Multicentre, Multidisciplinary, Clinical-Biological Database for Kidney Cancer

France, 2007 - 3000
Reference ID
FRESH-PEF8176-en
Producer(s)
Solène;RICARD
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
Page views
36
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Access policy
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF8176-en
    Title

    National Multicentre, Multidisciplinary, Clinical-Biological Database for Kidney Cancer
    Abbreviation or Acronym

    UroCCR
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Paraclinical data (non-biological)','Paraclinical data (non-biological) : Imaging','Biological data','Socio-demographic data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Oncology health theme
    Nephrology health theme
    Neoplasms cim-11
    Biological determinants: Genetic predisposition health determinant
    Healthcare system determinants: Use of care health determinant
    Biological determinants health determinant
    Healthcare system determinants health determinant
    Keywords
    kidney cancer clinical-biological database medical and scientific network medical oncology ablation treatment anatomical pathology oncogenetics therapeutic treatment surgery

    Coverage

    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Young Adult (19 to 24 years)","concept":{"vocab":"MeSH","vocabURI":"D055815"}},{"value":"Adult (25 to 44 years)","concept":{"vocab":"MeSH","vocabURI":"D000328"}},{"value":"Middle Aged (45 to 64 years)","concept":{"vocab":"MeSH","vocabURI":"D008875"}},{"value":"Aged (65 to 79 years)","concept":{"vocab":"MeSH","vocabURI":"D000368"}},{"value":"Aged, 80 and over (80 years and more)","concept":{"vocab":"MeSH","vocabURI":"D000369"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"Adult patient with kidney cancer - Patient not objecting to the collection of data for the study","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Solène;RICARD
    Producers
    Name Role
    CENTRE HOSPITALIER UNIVERSITAIRE DE BORDEAUX sponsor
    Funding Agency/Sponsor
    Name
    INSTITUT NATIONAL DU CANCER (INCA)
    Other Identifications/Acknowledgments
    Name
    Prospective ancillary projects: - Robotic Partial Nephrectomy national study (RoPaN) - Cancer and tArgeted theRapy: survey of Long term Adverse events (CARLA Rein) Partnerships and scientific support: - French Urology Association (AFU) - Urogenital Tumours Study Group (GETUG) - Urogenital Imaging Society (SIGU) - French Urological Pathology Club - French Cancer Registry Network (FRANCIM) - Kidney Tumour Research Association (ARTuR) - University of Bordeaux - Cancéropôle Grand Sud-Ouest - IBiSA

    Study authorization

    Agency
    Agency name
    CNIL
    CESREES

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2007-01-01 3000-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Transcription","vocab":"CESSDA"},"value":"Converting or copying information into a structured record"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health event/mortality Health care consumption and services

    Access policy

    Completeness of Study Stored

    The database is anonymous to ensure data confidentiality

    Data Access

    Confidentiality
    Confidentiality declaration text
    The confidentiality of data collected for UroCCR base is assured by: - Approval of the entire study by the Advisory Committee on Research Information Processing in the Health Field and the National Commission for Data Protection and Liberties (CNIL). - Professional confidentiality to which all members of UroCCR are subjected to (signing a confidentiality agreement), as well as the participating centres (signing a partnership charter on confidentiality regulations). - Strictly anonymous analysis of collected data.
    Access conditions

    Approval of the entire study by the Advisory Committee on Research Information Processing in the Health Field and the National Commission for Data Protection and Liberties (CNIL).
    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}
    Restrictions

    The database is secured by an encrypted connection (https) and an individual user account (username and password), ensuring data protection for each centre.

    Contacts

    Contacts
    Name Email
    Jean-Christophe;BERNHARD jean-christophe.bernhard@chu-bordeaux.fr
    Solène;RICARD solene.ricard@chu-bordeaux.fr
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