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COHORT ON HEALTH-RELATED QUALITY OF LIFE IN GYNAECHOLOGIC ONCOLOGY

France, 2015 - 3000
Reference ID
FRESH-PEF8137-en
Producer(s)
Charles;COUTANT, Sandrine;DABAKUYO, Rajeev;RAMANAH, Sophie;PAGET-BAILLY, Elsa;KALBACHER
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
Page views
36
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF8137-en
    Title

    COHORT ON HEALTH-RELATED QUALITY OF LIFE IN GYNAECHOLOGIC ONCOLOGY
    Abbreviation or Acronym

    GYNEQOL
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Biological data','Socio-demographic data','Participant-reported health data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Gynaecology and obstetrics health theme
    Oncology health theme
    Malignant neoplasms of female genital organs cim-11
    Behavioral determinants health determinant
    Biological determinants: Genetic predisposition health determinant
    Socio-demographic and economic determinants health determinant
    Environmental determinants: Other health determinant
    Biological determinants health determinant
    Environmental determinants health determinant
    Keywords
    Endometrial cancer cervical cancer vulvar cancer ovarian cancer quality of life sexuality

    Coverage

    Geographic Coverage

    ['Bourgogne Franche-Comté']
    Universe

    {"level_sex_clusion_I":[{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Young Adult (19 to 24 years)","concept":{"vocab":"MeSH","vocabURI":"D055815"}},{"value":"Adult (25 to 44 years)","concept":{"vocab":"MeSH","vocabURI":"D000328"}},{"value":"Middle Aged (45 to 64 years)","concept":{"vocab":"MeSH","vocabURI":"D008875"}},{"value":"Aged (65 to 79 years)","concept":{"vocab":"MeSH","vocabURI":"D000368"}},{"value":"Aged, 80 and over (80 years and more)","concept":{"vocab":"MeSH","vocabURI":"D000369"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"Selected pelvic cancers are cervical, uterine body, ovarian, vaginal and vulvar cancer, irrespective of histological type and stage: - Follow-up in Franche-Comté and the Georges François Leclerc Centre in Dijon - Age: 18 years and over - good knowledge of French - Able to respond to questionnaires (no major cognitive impairment) - Living in Franche Comté and Burgundy at time of diagnosis - having given signed consent - Covered by Social Security","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Charles;COUTANT
    Sandrine;DABAKUYO
    Rajeev;RAMANAH
    Sophie;PAGET-BAILLY
    Elsa;KALBACHER
    Producers
    Name Role
    UNIVERSITE MARIE ET LOUIS PASTEUR (UMLP) sponsor
    CHU BESANCON (CHU) sponsor

    Study authorization

    Agency
    Agency name
    CNIL

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2015-01-01 3000-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Transcription","vocab":"CESSDA"},"value":"Converting or copying information into a structured record"}
    • {"concept":{"vocabURI":"Interview","vocab":"CESSDA"},"value":"Interview with the participant (including clinical)"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health event/mortality Health care consumption and services Quality of life/health perception

    Data Access

    Access conditions

    Contact the principal investigator
    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}

    Contacts

    Contacts
    Name Email
    Charles;COUTANT ccoutant@cgfl.fr
    Sandrine;DABAKUYO sdabakuyo@cgfl.fr
    Rajeev;RAMANAH rajeev.ramanah@univ-fcomte.fr
    Sophie;PAGET-BAILLY spaget@chu-besancon.fr
    Elsa;KALBACHER elsa.kalbacher@clermont.unicancer.fr
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