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The Global Hypopituitary Control and Complications Study (HypoCCS)-A Global Observational Research Program

France, Madagascar, Côte d'ivoire...and 4 more, 2003 - 2013
Reference ID
FRESH-PEF78-en
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
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39
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access

    • Identification

    Survey ID number

    FRESH-PEF78-en
    Title

    The Global Hypopituitary Control and Complications Study (HypoCCS)-A Global Observational Research Program
    Abbreviation or Acronym

    HypoCCS
    Country
    Name Country code
    France fr
    Madagascar mg
    Côte d'ivoire ci
    Mali ml
    Guinea gn
    Bangladesh bd
    Lebanon lb
    Kind of Data

    ['Clinical data','Paraclinical data (non-biological)','Paraclinical data (non-biological) : Imaging','Paraclinical data (non-biological) : Function testing','Biological data','Participant-reported health data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Endocrinology health theme
    Healthcare system determinants: Use of care health determinant
    Healthcare system determinants health determinant
    Keywords
    Somatotrope deficiency adult treatments tolerance quality of life

    Coverage

    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Young Adult (19 to 24 years)","concept":{"vocab":"MeSH","vocabURI":"D055815"}},{"value":"Adult (25 to 44 years)","concept":{"vocab":"MeSH","vocabURI":"D000328"}},{"value":"Middle Aged (45 to 64 years)","concept":{"vocab":"MeSH","vocabURI":"D008875"}},{"value":"Aged (65 to 79 years)","concept":{"vocab":"MeSH","vocabURI":"D000368"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"Adult patients suffering from growth hormone deficiency secondary to a hypothalamic or pituitary disease appearing in adulthood or suffering from a growth hormone deficiency since childhood, - having terminated their growth (epiphyseal closure), - having no contraindications to the treatment such as are specified in the summary of product characteristics.","clusion_E":""}

    Producers and sponsors

    Producers
    Name Role
    LILLY FRANCE sponsor
    Funding Agency/Sponsor
    Name
    AGENCE NATIONALE DE RECHERCHES SUR LE SIDA ET LES HEPATITES VIRALES (ANRS MIE)

    Study authorization

    Agency
    Agency name
    CNIL

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2003-01-01 2013-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Interview","vocab":"CESSDA"},"value":"Interview with the participant (including clinical)"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Quality of life/health perception

    Data Access

    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}
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