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The Genetics and Neuroendocrinology of Short Stature International study

Croatia, Denmark, France...and 5 more, 2000 - 2015
Reference ID
FRESH-PEF77-en
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
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40
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access

    • Identification

    Survey ID number

    FRESH-PEF77-en
    Title

    The Genetics and Neuroendocrinology of Short Stature International study
    Abbreviation or Acronym

    GeNesis
    Country
    Name Country code
    Croatia hr
    Denmark dk
    France fr
    Greece gr
    Italy it
    Norway no
    Slovenia si
    Sweden se
    Kind of Data

    ['Clinical data','Biological data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Endocrinology health theme
    Paediatrics health theme
    Biological determinants: Genetic predisposition health determinant
    Healthcare system determinants: Use of care health determinant
    Biological determinants health determinant
    Healthcare system determinants health determinant
    Keywords
    Growth retardation auxological measurements relative efficacy in actual life children treatment tolerance

    Coverage

    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Child (6 to 12 years)","concept":{"vocab":"MeSH","vocabURI":"D002648"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"Children having a growth disorders whether or not treated via somatropin","clusion_E":""}

    Producers and sponsors

    Producers
    Name Role
    LILLY FRANCE sponsor
    Funding Agency/Sponsor
    Name
    AGENCE NATIONALE DE RECHERCHES SUR LE SIDA ET LES HEPATITES VIRALES (ANRS MIE)

    Study authorization

    Agency
    Agency name
    CNIL

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2000-01-01 2015-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Transcription","vocab":"CESSDA"},"value":"Converting or copying information into a structured record"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity

    Data Access

    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}
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