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Observational study on the impact of the COVID-19 epidemic on patients with myeloproliferative neoplasms

France, 2020 - 2021
Reference ID
FRESH-PEF73637-en
Producer(s)
Jean-Jacques;KILADJIAN
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
Page views
54
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF73637-en
    Title

    Observational study on the impact of the COVID-19 epidemic on patients with myeloproliferative neoplasms
    Abbreviation or Acronym

    FILO-COVIM
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Biological data','Participant-reported health data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Hematology health theme
    Polycythaemia vera cim-11
    Neoplasms of haematopoietic or lymphoid tissues cim-11
    COVID-19 cim-11
    Biological determinants: Genetic predisposition health determinant
    Healthcare system determinants: Use of care health determinant
    Healthcare system determinants: Access to care health determinant
    Biological determinants health determinant
    Healthcare system determinants health determinant

    Coverage

    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Adolescent (13 to 18 years)","concept":{"vocab":"MeSH","vocabURI":"D000293"}},{"value":"Young Adult (19 to 24 years)","concept":{"vocab":"MeSH","vocabURI":"D055815"}},{"value":"Adult (25 to 44 years)","concept":{"vocab":"MeSH","vocabURI":"D000328"}},{"value":"Middle Aged (45 to 64 years)","concept":{"vocab":"MeSH","vocabURI":"D008875"}},{"value":"Aged (65 to 79 years)","concept":{"vocab":"MeSH","vocabURI":"D000368"}},{"value":"Aged, 80 and over (80 years and more)","concept":{"vocab":"MeSH","vocabURI":"D000369"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"Male or female aged 18 years and over Male or female patient with PV, ET, PMF or MF secondary to PV or ET diagnosed before the COVID-19 pandemic Attending an appointment from April 2020","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Jean-Jacques;KILADJIAN
    Producers
    Name Role
    FRENCH INNOVATIVE LEUKEMIA ORGANIZATION (F.I.L.O.). (F.I.L.O.) sponsor

    Study authorization

    Agency
    Agency name
    CNIL

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2020-01-01 2021-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Transcription","vocab":"CESSDA"},"value":"Converting or copying information into a structured record"}
    • {"concept":{"vocabURI":"Interview","vocab":"CESSDA"},"value":"Interview with the participant (including clinical)"}

    Data Access

    Availability Status

    {"value":"To be defined","extLink":[]}

    Contacts

    Contacts
    Name Email
    Jean-Jacques;KILADJIAN jean-jacques.kiladjian@aphp.fr
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