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Epidemiology and treatment patterns in Soft Tissue Sarcoma (STS): a retrospective analysis on French expert centers databases

France, 2012 - 2013
Reference ID
FRESH-PEF73335-en
Producer(s)
Binh Bui;NGUYEN, Jean-Yves;BLAY, Jean-Michel;COINDRE, Simone;MATHOULIN-PELISSIER, Axel;LE CESNE, Françoise;DUCIMETIERE
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
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  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF73335-en
    Title

    Epidemiology and treatment patterns in Soft Tissue Sarcoma (STS): a retrospective analysis on French expert centers databases
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Oncology health theme
    Neoplasms cim-11
    Healthcare system determinants: Access to care health determinant
    Keywords
    Soft Tissue Sarcoma (STS)

    Coverage

    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Young Adult (19 to 24 years)","concept":{"vocab":"MeSH","vocabURI":"D055815"}},{"value":"Adult (25 to 44 years)","concept":{"vocab":"MeSH","vocabURI":"D000328"}},{"value":"Middle Aged (45 to 64 years)","concept":{"vocab":"MeSH","vocabURI":"D008875"}},{"value":"Aged (65 to 79 years)","concept":{"vocab":"MeSH","vocabURI":"D000368"}},{"value":"Aged, 80 and over (80 years and more)","concept":{"vocab":"MeSH","vocabURI":"D000369"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"Patients with a diagnosis of STS, aged > 18 years-old, registered in the Conticabase/NetSarc/RRePS databases between January, 1st 2012 and December, 31st 2013 by a French expert center participating in the study between January, 1st 2012 and December, 31st 2013.","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Binh Bui;NGUYEN
    Jean-Yves;BLAY
    Jean-Michel;COINDRE
    Simone;MATHOULIN-PELISSIER
    Axel;LE CESNE
    Françoise;DUCIMETIERE
    Producers
    Name Role
    GROUPE SARCOME FRANCAIS - GROUPE D'ETUDE DES TUMEURS OSSEUSES (GSF-GETO) sponsor
    Funding Agency/Sponsor
    Name
    MERCK SANTE
    Other Identifications/Acknowledgments
    Name
    Partenariat public-privé : French Sarcoma Group (GFS) - MERCK

    Study authorization

    Agency
    Agency name
    CNIL

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2012-01-01 2013-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"SelfAdministeredQuestionnaire","vocab":"CESSDA"},"value":"Self-administered questionnaire"}

    Data Access

    Availability Status

    {"value":"To be defined","extLink":[]}

    Contacts

    Contacts
    Name Email
    Jean-Yves;BLAY jean-yves.blay@lyon.unicancer.fr
    Jean-Michel;COINDRE J.Coindre@bordeaux.unicancer.fr
    Simone;MATHOULIN-PELISSIER simone.pelissier@u-bordeaux.fr
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