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Cross-sectional studies on what becomes of children with chronic pathologies in adulthood

France
Reference ID
FRESH-PEF73256-en
Producer(s)
Chantal;LOIRAT, Claire;LEVY-MARCHAL, Gérard;BREART, Sophie;GUILMIN-CREPON, Hélène;MELLERIO
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
Page views
49
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF73256-en
    Title

    Cross-sectional studies on what becomes of children with chronic pathologies in adulthood
    Abbreviation or Acronym

    GEDEPAC studies
    Country
    Name Country code
    France fr
    Kind of Data

    ['Participant-reported health data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Endocrinology health theme
    Nephrology health theme
    Type 1 diabetes mellitus cim-11
    Biological determinants: Genetic predisposition health determinant
    Healthcare system determinants: Access to care health determinant
    Behavioral determinants health determinant
    Socio-demographic and economic determinants health determinant
    Other health determinant
    Biological determinants health determinant
    Keywords
    Socio-professional life Somatic health Paediatrics - adult medicine transition high-risk behaviours Chronic diseases Quality of life children

    Coverage

    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Young Adult (19 to 24 years)","concept":{"vocab":"MeSH","vocabURI":"D055815"}},{"value":"Adult (25 to 44 years)","concept":{"vocab":"MeSH","vocabURI":"D000328"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"Chronic disease in childhood (according to the survey: Type 1 diabetes or end-stage renal failure treated by a kidney transplant), valid postal address, last news within less than 12 months, reply to the questionnaire","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Chantal;LOIRAT
    Claire;LEVY-MARCHAL
    Gérard;BREART
    Sophie;GUILMIN-CREPON
    Hélène;MELLERIO
    Producers
    Name Role
    INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM) sponsor
    PFIZER FOUNDATION FOR CHILD AND ADOLESCENT HEALTH sponsor
    Funding Agency/Sponsor
    Name
    PFIZER FOUNDATION FOR CHILD AND ADOLESCENT HEALTH
    Other Identifications/Acknowledgments
    Name
    Integrated surveys in GEDEPAC, Study Group on the Future of Children with Chronic Diseases

    Study authorization

    Agency
    Agency name
    CPP

    Sampling

    Sample frame

    Unit Type

    ['Disease and death registry']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Time Method

    One-time cross-sectional study
    Mode of data collection
    • {"concept":{"vocabURI":"SelfAdministeredQuestionnaire","vocab":"CESSDA"},"value":"Self-administered questionnaire"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health care consumption and services Quality of life/health perception

    Data Access

    Access conditions

    On request
    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}

    Contacts

    Contacts
    Name Email
    Chantal;LOIRAT chantal.loirat@aphp.fr
    Gérard;BREART gerard.breart@aphp.fr
    Sophie;GUILMIN-CREPON sophie.guilmin-crepon@aphp.fr
    Hélène;MELLERIO helene.mellerio@aphp.fr
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