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Cohort of Children from Women Exposed to Synthetic Hormones During Pregnancy

France, 2002 - 2007
Reference ID
FRESH-PEF73222-en
Producer(s)
Marie-Odile;SOYER-GOBILLARD
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
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  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access

    • Identification

    Survey ID number

    FRESH-PEF73222-en
    Title

    Cohort of Children from Women Exposed to Synthetic Hormones During Pregnancy
    Abbreviation or Acronym

    HHORAGES
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Participant-reported health data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Gynaecology and obstetrics health theme
    Psychiatry health theme
    Biological determinants: Genetic predisposition health determinant
    Environmental determinants: Other health determinant
    Environmental determinants health determinant
    Biological determinants health determinant
    Keywords
    diethylstilbestrol psychiatric disorders synthetic oestrogen ethinylestradiol behavioural and somatic disorders exposure pregnancy

    Coverage

    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Adolescent (13 to 18 years)","concept":{"vocab":"MeSH","vocabURI":"D000293"}},{"value":"Young Adult (19 to 24 years)","concept":{"vocab":"MeSH","vocabURI":"D055815"}},{"value":"Adult (25 to 44 years)","concept":{"vocab":"MeSH","vocabURI":"D000328"}},{"value":"Middle Aged (45 to 64 years)","concept":{"vocab":"MeSH","vocabURI":"D008875"}}],"level_type_clusion_I":"General population","level_type_clusion_other":"","clusion_I":"Volunteers born between 1946 and 1995.","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Marie-Odile;SOYER-GOBILLARD
    Producers
    Name Role
    AHREK ASS HAUTEVI RECHERCHE ETUDE KINESI sponsor
    Funding Agency/Sponsor
    Name
    HHORAGES-FRANCE
    REGION ILE DE FRANCE

    Study authorization

    Agency
    Agency name
    CNIL

    Sampling

    Sample frame

    Unit Type

    ['Through independent healthcare practitioners']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2002-01-01 2007-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Transcription","vocab":"CESSDA"},"value":"Converting or copying information into a structured record"}
    • {"concept":{"vocabURI":"Interview","vocab":"CESSDA"},"value":"Interview with the participant (including clinical)"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity

    Data Access

    Access conditions

    Other researchers had access to our cohort and a study is being published, however only the families may accept or refuse to participate.
    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}
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