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Cohort of Children with Multiple Disabilities: Long-Term Prospective Outcomes

France, 2006 - 2016
Reference ID
FRESH-PEF73221-en
Producer(s)
Thierry;BILLETTE DE VILLEMEUR
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
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42
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access

    • Identification

    Survey ID number

    FRESH-PEF73221-en
    Title

    Cohort of Children with Multiple Disabilities: Long-Term Prospective Outcomes
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Paediatrics health theme
    Limited function or disability of body organ or system cim-11
    Socio-demographic and economic determinants health determinant
    Behavioral determinants health determinant
    Healthcare system determinants: Use of care health determinant
    Healthcare system determinants: Access to care health determinant
    Healthcare system determinants health determinant
    Keywords
    multiple disabilities care children quality of life

    Coverage

    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Child (6 to 12 years)","concept":{"vocab":"MeSH","vocabURI":"D002648"}}],"level_type_clusion_I":"People with disabilities","level_type_clusion_other":"","clusion_I":"Children with multiple disabilities.","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Thierry;BILLETTE DE VILLEMEUR
    Producers
    Name Role
    ASSISTANCE PUBLIQUE HOPITAUX DE PARIS (AP-HP) sponsor
    Funding Agency/Sponsor
    Name
    ASSISTANCE PUBLIQUE HOPITAUX DE PARIS (AP-HP)

    Study authorization

    Agency
    Agency name
    CNIL

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2006-01-01 2016-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Transcription","vocab":"CESSDA"},"value":"Converting or copying information into a structured record"}
    • {"concept":{"vocabURI":"Interview","vocab":"CESSDA"},"value":"Interview with the participant (including clinical)"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health care consumption and services Quality of life/health perception

    Data Access

    Access conditions

    Contact the principal investigator
    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}
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