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Registry on Kawasaki Disease

France, 2011 - 2014
Reference ID
FRESH-PEF73218-en
Producer(s)
Martha;DARCE-BELLO, Isabelle;KONE-PAUT, Maryam;PIRAM
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
Page views
43
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF73218-en
    Title

    Registry on Kawasaki Disease
    Abbreviation or Acronym

    KAWA-NET
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Cardiology and vascular medicine health theme
    Paediatrics health theme
    Rheumatology health theme
    Mucocutaneous lymph node syndrome cim-11
    Keywords
    kawanet heart complications Kawasaki treatment

    Coverage

    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Infant, Newborn (birth to 28 days)","concept":{"vocab":"MeSH","vocabURI":"D007231"}},{"value":"Infant (28 days to 2 years)","concept":{"vocab":"MeSH","vocabURI":"D007223"}},{"value":"Child, Preschool (2 to 5 years)","concept":{"vocab":"MeSH","vocabURI":"D002675"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"Patients diagnosed with KD in a French hospital were prospectively and retrospectively included between 01/2011 and 03/2014. Data was stored on a secure electronic database (Cleanweb). A DNA-trio collection was carried out among consenting families.","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Martha;DARCE-BELLO
    Isabelle;KONE-PAUT
    Maryam;PIRAM
    Producers
    Name Role
    ASSISTANCE PUBLIQUE HOPITAUX DE PARIS (AP-HP) sponsor
    Funding Agency/Sponsor
    Name
    MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES

    Study authorization

    Agency
    Agency name
    CNIL

    Sampling

    Sample frame

    Unit Type

    ['']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2011-01-01 2014-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Transcription","vocab":"CESSDA"},"value":"Converting or copying information into a structured record"}
    • {"concept":{"vocabURI":"Interview","vocab":"CESSDA"},"value":"Interview with the participant (including clinical)"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health care consumption and services

    Data Access

    Access conditions

    Contact the principal investigator
    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}

    Contacts

    Contacts
    Name Email
    Martha;DARCE-BELLO martha.darce@aphp.fr
    Isabelle;KONE-PAUT isabelle.kone-paut@aphp.fr
    Maryam;PIRAM maryam.piram.hsj@ssss.gouv.qc.ca
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