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Registry on Amyotrophic Lateral Sclerosis (ALS) in Limousin

France, 2000 - 3000
Reference ID
FRESH-PEF73035-en
Producer(s)
Philippe;COURATIER, Benoît;MARIN, Pierre-Marie;PREUX
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
Page views
36
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Quality standards
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF73035-en
    Title

    Registry on Amyotrophic Lateral Sclerosis (ALS) in Limousin
    Abbreviation or Acronym

    FRALim
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Socio-demographic data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Neurology health theme
    Amyotrophic lateral sclerosis cim-11
    Biological determinants: Genetic predisposition health determinant
    Biological determinants health determinant
    Keywords
    amyotrophic lateral sclerosis ALS Limousin treatment registry

    Coverage

    Geographic Coverage

    ['Nouvelle-Aquitaine']
    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Young Adult (19 to 24 years)","concept":{"vocab":"MeSH","vocabURI":"D055815"}},{"value":"Adult (25 to 44 years)","concept":{"vocab":"MeSH","vocabURI":"D000328"}},{"value":"Middle Aged (45 to 64 years)","concept":{"vocab":"MeSH","vocabURI":"D008875"}},{"value":"Aged (65 to 79 years)","concept":{"vocab":"MeSH","vocabURI":"D000368"}},{"value":"Aged, 80 and over (80 years and more)","concept":{"vocab":"MeSH","vocabURI":"D000369"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"Patients with ALS identified by one of the following 3 sources: The French national body coordinating ALS referral centres; public and private hospitals in the Limousin region; health insurance data.","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Philippe;COURATIER
    Benoît;MARIN
    Pierre-Marie;PREUX
    Producers
    Name Role
    INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM) sponsor
    Funding Agency/Sponsor
    Name
    AGENCE NATIONALE DE LA RECHERCHE (ANR)
    REGION NOUVELLE AQUITAINE
    Other Identifications/Acknowledgments
    Name
    EURALS (European ALS Consortium)

    Study authorization

    Agency
    Agency name
    CNIL
    CESREES

    Sampling

    Sample frame

    Unit Type

    ['']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2000-01-01 3000-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Transcription","vocab":"CESSDA"},"value":"Converting or copying information into a structured record"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health event/mortality Health care consumption and services

    Quality standards

    Other quality statement

    ['The collaborating centre for methodology is CEBIMER (Centre of epidemiology, biostatistics and research methodology), Limoges University Hospital, led by Prof. Preux; Dr. Marin, deputy head of the Capture-R System Management software.']

    Data Access

    Access conditions

    Available under certain conditions (contact 1 of 3 scientists in charge).
    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}

    Contacts

    Contacts
    Name Email
    Philippe;COURATIER philippe.couratier@unilim.fr
    Benoît;MARIN benoit.marin@aphp.fr
    Pierre-Marie;PREUX preux@unilim.fr
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