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Assessment of Systemic Involvement and Progression for Patients with Primary Sjogren's Syndrome

France, 2006 - 2009
Reference ID
FRESH-PEF6873-en
Producer(s)
Jacques-Eric;GOTTENBERG
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
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42
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF6873-en
    Title

    Assessment of Systemic Involvement and Progression for Patients with Primary Sjogren's Syndrome
    Abbreviation or Acronym

    ASSESS
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Clinical immunology health theme
    Keywords
    Prevalence risk factor

    Coverage

    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Middle Aged (45 to 64 years)","concept":{"vocab":"MeSH","vocabURI":"D008875"}},{"value":"Aged (65 to 79 years)","concept":{"vocab":"MeSH","vocabURI":"D000368"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"Men or women - adults - patients in tertiary centres for autoimmune diseases","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Jacques-Eric;GOTTENBERG
    Producers
    Name Role
    LES HOPITAUX UNIVERSITAIRES DE STRASBOURG (HUS) sponsor
    Funding Agency/Sponsor
    Name
    MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES

    Study authorization

    Agency
    Agency name
    CPP

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2006-01-01 2009-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Transcription","vocab":"CESSDA"},"value":"Converting or copying information into a structured record"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health care consumption and services

    Data Access

    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}
    Restrictions

    Data unavailable to other researchers, except for authorisation requests for IP data mining to the coordinating investigator

    Contacts

    Contacts
    Name Email
    Jacques-Eric;GOTTENBERG jacques-eric.gottenberg@chru-strasbourg.fr
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