Home / Central Data Catalog / FRESH-PEF60196-EN
central

National Prospective Cohort Follow-Up for Children with Severe Autoimmune Cytopenia

France, 2008 - 2011
Reference ID
FRESH-PEF60196-en
Producer(s)
Nathalie;ALADJIDI, Yves;PEREL
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
Page views
37
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF60196-en
    Title

    National Prospective Cohort Follow-Up for Children with Severe Autoimmune Cytopenia
    Abbreviation or Acronym

    BIOCEREVANCE 1
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Biological data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Clinical immunology health theme
    Hematology health theme
    Paediatrics health theme
    Immune thrombocytopenic purpura cim-11
    Autoimmune haemolytic anaemia, warm type cim-11
    Evans syndrome cim-11
    Keywords
    Clinical progression prognostic factors autoimmune haemolytic anaemia Evans syndrome chronic immune thrombocytopenic purpura research network biobank physiopathological mechanisms of these diseases child

    Coverage

    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Infant, Newborn (birth to 28 days)","concept":{"vocab":"MeSH","vocabURI":"D007231"}},{"value":"Infant (28 days to 2 years)","concept":{"vocab":"MeSH","vocabURI":"D007223"}},{"value":"Child, Preschool (2 to 5 years)","concept":{"vocab":"MeSH","vocabURI":"D002675"}},{"value":"Child (6 to 12 years)","concept":{"vocab":"MeSH","vocabURI":"D002648"}},{"value":"Adolescent (13 to 18 years)","concept":{"vocab":"MeSH","vocabURI":"D000293"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"Under 18 years of age and affiliated with a social security scheme - Living in mainland France Patients with AIHA, chronic ITP and/or ES, regardless of underlying factors Free informed written and signed consent by parental authority holders as well as the child or adolescent if they are of age","clusion_E":"constitutional haemolytic anaemia and constitutional platelet disease"}

    Producers and sponsors

    Primary investigators
    Name
    Nathalie;ALADJIDI
    Yves;PEREL
    Producers
    Name Role
    CENTRE HOSPITALIER UNIVERSITAIRE DE BORDEAUX sponsor
    Funding Agency/Sponsor
    Name
    MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES

    Study authorization

    Agency
    Agency name
    CNIL
    CPP

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2008-01-01 2011-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Transcription","vocab":"CESSDA"},"value":"Converting or copying information into a structured record"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health event/mortality

    Data Access

    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}
    Restrictions

    To be decided if data may be used by academic teams To be decided if data may be used by industrial teams

    Contacts

    Contacts
    Name Email
    Nathalie;ALADJIDI nathalie.aladjidi@chu-bordeaux.fr
    Back to Catalog