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Cross-cultural Validation of Systemic Lupus Activity (SLAQ) and Lupus Quality of Life (Lupus QOL) Questionnaires in French

France, 2009 - 2010
Reference ID
FRESH-PEF60147-en
Producer(s)
Claire;BONITHON-KOPP, Francis;GUILLEMIN
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
Page views
42
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF60147-en
    Title

    Cross-cultural Validation of Systemic Lupus Activity (SLAQ) and Lupus Quality of Life (Lupus QOL) Questionnaires in French
    Abbreviation or Acronym

    FRESH QOLA
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Participant-reported health data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Clinical immunology health theme
    Dermatology health theme
    Socio-demographic and economic determinants: Employment health determinant
    Behavioral determinants health determinant
    Socio-demographic and economic determinants health determinant
    Keywords
    Advancement translation French quality of life questionnaire

    Coverage

    Geographic Coverage

    ['Grand Est','Bourgogne Franche-Comté']
    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Young Adult (19 to 24 years)","concept":{"vocab":"MeSH","vocabURI":"D055815"}},{"value":"Adult (25 to 44 years)","concept":{"vocab":"MeSH","vocabURI":"D000328"}},{"value":"Middle Aged (45 to 64 years)","concept":{"vocab":"MeSH","vocabURI":"D008875"}},{"value":"Aged (65 to 79 years)","concept":{"vocab":"MeSH","vocabURI":"D000368"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"Patients fulfilling ACR 1997 criteria for systemic lupus erythematosus classification; - patients that understand written and spoken French; - patients between 18 and 75 years of age; - patients who received oral and written information regarding research.","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Claire;BONITHON-KOPP
    Francis;GUILLEMIN
    Producers
    Name Role
    CENTRE HOSPITALIER UNIVERSITAIRE DE DIJON sponsor
    Funding Agency/Sponsor
    Name
    LUPUS FRANCE

    Study authorization

    Agency
    Agency name
    CNIL

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2009-01-01 2010-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"SelfAdministeredQuestionnaire","vocab":"CESSDA"},"value":"Self-administered questionnaire"}
    • {"concept":{"vocabURI":"Interview","vocab":"CESSDA"},"value":"Interview with the participant (including clinical)"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Quality of life/health perception

    Data Access

    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}
    Restrictions

    To be decided if data may be used by academic teams Data may not be used by industrial teams

    Contacts

    Contacts
    Name Email
    Claire;BONITHON-KOPP bonithon@u-bourgogne.fr
    Francis;GUILLEMIN francis.guillemin@univ-lorraine.fr
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