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Cohort of Children with IBD (Inflammatory Bowel Disease)

France, 1988 - 2011
Reference ID
FRESH-PEF60126-en
Producer(s)
Jean-Frédéric;COLOMBEL
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
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42
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Quality standards
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF60126-en
    Title

    Cohort of Children with IBD (Inflammatory Bowel Disease)
    Abbreviation or Acronym

    PAEDIATRIC IBD (MICI PEDIATRIQUE)
    Country
    Name Country code
    France fr
    Kind of Data

    ['Paraclinical data (non-biological)','Paraclinical data (non-biological) : Imaging','Biological data','Participant-reported health data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Clinical immunology health theme
    Paediatrics health theme
    Biological determinants: Genetic predisposition health determinant
    Biological determinants health determinant
    Keywords
    inflammatory diease hospitalisation treatment complications death

    Coverage

    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Infant, Newborn (birth to 28 days)","concept":{"vocab":"MeSH","vocabURI":"D007231"}},{"value":"Infant (28 days to 2 years)","concept":{"vocab":"MeSH","vocabURI":"D007223"}},{"value":"Child, Preschool (2 to 5 years)","concept":{"vocab":"MeSH","vocabURI":"D002675"}},{"value":"Child (6 to 12 years)","concept":{"vocab":"MeSH","vocabURI":"D002648"}},{"value":"Adolescent (13 to 18 years)","concept":{"vocab":"MeSH","vocabURI":"D000293"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"The cohort consists of children with certain or probable Crohn's Disease (CD) or certain or probable ulcerative colitis (UC) identified in the EPIMAD registry between 1988 and 2002. Children: under 17 years old at the time of diagnosis","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Jean-Frédéric;COLOMBEL
    Producers
    Name Role
    CENTRE HOSPITALIER UNIVERSITAIRE DE LILLE (CHU) sponsor
    Funding Agency/Sponsor
    Name
    MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES
    Other Identifications/Acknowledgments
    Name
    Other related cohorts: some general population paediatric cohorts, particularly in Scandinavia and Scotland.

    Study authorization

    Agency
    Agency name
    CPP

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    1988-01-01 2011-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Interview","vocab":"CESSDA"},"value":"Interview with the participant (including clinical)"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health event/mortality Health care consumption and services

    Quality standards

    Other quality statement

    ['Consistency request upon entering computer data and following collection of computer data. Management of missing data by returning to source file and/or returning to general practitioner. Physician reminder for follow-up visits. Internal quality audit carried out once a year. Patients are informed about the use of their data.']

    Data Access

    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}
    Restrictions

    To be decided if data may be used by academic teams: comparison and validation of data with other IBD cohorts (USA, Norway). Data may not be used by industrial teams.

    Contacts

    Contacts
    Name Email
    Jean-Frédéric;COLOMBEL jean-frederic.colombel@chru-lille.fr
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