Home / Central Data Catalog / FRESH-PEF60119-EN
central

Prospective Follow-Up of Population with Parkinson's Disease - COPARK Cohort

France, 2006 - 2013
Reference ID
FRESH-PEF60119-en
Producer(s)
Olivier;RASCOL
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
Page views
38
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF60119-en
    Title

    Prospective Follow-Up of Population with Parkinson's Disease - COPARK Cohort
    Abbreviation or Acronym

    COPARK
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Participant-reported health data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Neurology health theme
    Biological determinants: Genetic predisposition health determinant
    Biological determinants health determinant
    Keywords
    Parkinson's symptoms activities daily life Health episodes quality of life treatment mortality

    Coverage

    Geographic Coverage

    ['Nouvelle-Aquitaine','Occitanie','Hauts-de-France','Pays de la Loire']
    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Aged (65 to 79 years)","concept":{"vocab":"MeSH","vocabURI":"D000368"}},{"value":"Aged, 80 and over (80 years and more)","concept":{"vocab":"MeSH","vocabURI":"D000369"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"Parkinson's patients with idiopathic Parkinson's disease (UKPDBB criteria) Over 18 years of age, non-institutionalised, with no atypical Parkinsonian syndrome, having never undergone neurosurgery, with no cognitive impairment (MMSE <24), with no serious life-threatening pathology, who have given signed informed consent.","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Olivier;RASCOL
    Producers
    Name Role
    LN PHARMA sponsor
    Funding Agency/Sponsor
    Name
    CENTRE HOSPITALIER UNIVERSITAIRE DE TOULOUSE (CHUT)
    INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM)
    LN PHARMA
    ASSOCIATION DE MALADES

    Study authorization

    Agency
    Agency name
    CNIL

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2006-01-01 2013-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"SelfAdministeredQuestionnaire","vocab":"CESSDA"},"value":"Self-administered questionnaire"}
    • {"concept":{"vocabURI":"Interview","vocab":"CESSDA"},"value":"Interview with the participant (including clinical)"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health event/mortality

    Data Access

    Access conditions

    Data access for research members and non-members under contract approved by the cohort Scientific Committee and according to the terms governing the charter between different partners.
    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}
    Restrictions

    Data may be used by academic teams. Data may be used by industrial teams

    Contacts

    Contacts
    Name Email
    Olivier;RASCOL rascol@cict.fr
    Back to Catalog