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Monitoring a cohort with anal incontinence in the Rhône-Alpes area

France, 2002 - 3000
Reference ID
FRESH-PEF60104-en
Producer(s)
Henri;DAMON, François;MION
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
Page views
36
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF60104-en
    Title

    Monitoring a cohort with anal incontinence in the Rhône-Alpes area
    Abbreviation or Acronym

    ORALIA
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Paraclinical data (non-biological)','Paraclinical data (non-biological) : Imaging','Paraclinical data (non-biological) : Function testing','Participant-reported health data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Andrology and urology health theme
    Healthcare system determinants: Use of care health determinant
    Healthcare system determinants health determinant
    Keywords
    Medical treatment surgical treatment perineal re-education additional diagnostic examinations absence from work

    Coverage

    Geographic Coverage

    ['Auvergne Rhône-Alpes']
    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Middle Aged (45 to 64 years)","concept":{"vocab":"MeSH","vocabURI":"D008875"}},{"value":"Aged (65 to 79 years)","concept":{"vocab":"MeSH","vocabURI":"D000368"}},{"value":"Aged, 80 and over (80 years and more)","concept":{"vocab":"MeSH","vocabURI":"D000369"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"Anal incontinence: Wexner score greater than 5/20","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Henri;DAMON
    François;MION
    Producers
    Name Role
    HOSPICES CIVILS DE LYON (HCL) sponsor
    Funding Agency/Sponsor
    Name
    MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES

    Study authorization

    Agency
    Agency name
    CNIL

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2002-01-01 3000-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"SelfAdministeredQuestionnaire","vocab":"CESSDA"},"value":"Self-administered questionnaire"}
    • {"concept":{"vocabURI":"Interview","vocab":"CESSDA"},"value":"Interview with the participant (including clinical)"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Quality of life/health perception

    Data Access

    Availability Status

    {"value":"Metadata-only access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_14cb"}]}

    Contacts

    Contacts
    Name Email
    Henri;DAMON damon.henri.heh.2014@gmail.com
    François;MION francois.mion@chu-lyon.fr
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