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Follow-up of a cohort of patients who received umbilical cord blood transplantation with malignant and non-malignant haematological diseases

United kingdom, Sweden, Norway...and 8 more, 1998 - 3000
Reference ID
FRESH-PEF60097-en
Producer(s)
Vanderson;ROCHA
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
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42
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF60097-en
    Title

    Follow-up of a cohort of patients who received umbilical cord blood transplantation with malignant and non-malignant haematological diseases
    Abbreviation or Acronym

    EUROCORD
    Country
    Name Country code
    United kingdom gb
    Sweden se
    Norway no
    Germany de
    Italy it
    Spain es
    France fr
    Belgium be
    Congo cg
    Iceland is
    Denmark dk
    Kind of Data

    ['Participant-reported health data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Cardiology and vascular medicine health theme
    Hematology health theme
    Malignant haematopoietic neoplasms without further specification cim-11
    Healthcare system determinants: Use of care health determinant
    Healthcare system determinants health determinant
    Keywords
    engraftment reaction graft against the host acute chronic Health episodes relapse mortality

    Coverage

    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Young Adult (19 to 24 years)","concept":{"vocab":"MeSH","vocabURI":"D055815"}},{"value":"Adult (25 to 44 years)","concept":{"vocab":"MeSH","vocabURI":"D000328"}},{"value":"Middle Aged (45 to 64 years)","concept":{"vocab":"MeSH","vocabURI":"D008875"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"All patients who received one or two units of umbilical cord blood in Europe or international patients who received one or two units of cord blood from European banks","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Vanderson;ROCHA
    Producers
    Name Role
    UNIVERSITE PARIS CITE sponsor
    Funding Agency/Sponsor
    Name
    AGENCE DE LA BIOMEDECINE
    ASSISTANCE PUBLIQUE HOPITAUX DE PARIS (AP-HP)

    Study authorization

    Agency
    Agency name
    CNIL

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    1998-01-01 3000-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Interview","vocab":"CESSDA"},"value":"Interview with the participant (including clinical)"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health event/mortality

    Data Access

    Access conditions

    Access determined by the Eurocord Scientific Council, The French Stem Cell Society (sfgm-tc) and EBMT.Contractual access with Biotech and pharmaceutical industry in discussion, but not currently active
    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}
    Restrictions

    Data may be used by academic teams . To be defined if data may be used by industrial teams.

    Contacts

    Contacts
    Name Email
    Vanderson;ROCHA rocha.vanderson@hotmail.fr
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