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Study of Genetic and Environmental Factors of Glomerular Nephropathy Progression

France, 2002 - 2004
Reference ID
FRESH-PEF60055-en
Producer(s)
Bénédicte;STENGEL
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
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39
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF60055-en
    Title

    Study of Genetic and Environmental Factors of Glomerular Nephropathy Progression
    Abbreviation or Acronym

    GN-PROGRESS
    Country
    Name Country code
    France fr
    Kind of Data

    ['Biological data','Participant-reported health data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Nephrology health theme
    Environmental determinants: Climate health determinant
    Environmental determinants health determinant
    Environmental determinants: Other health determinant
    Biological determinants: Genetic predisposition health determinant
    Biological determinants health determinant
    Keywords
    Health episodes renal transplantation

    Coverage

    Geographic Coverage

    ['Ile-de-France']
    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Young Adult (19 to 24 years)","concept":{"vocab":"MeSH","vocabURI":"D055815"}},{"value":"Adult (25 to 44 years)","concept":{"vocab":"MeSH","vocabURI":"D000328"}},{"value":"Middle Aged (45 to 64 years)","concept":{"vocab":"MeSH","vocabURI":"D008875"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"IgA-type glomerulonephritis, focal and segmental hyalinosis or extramembranous glomerulopathy, having had a biopsy between 1994 and 2001","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Bénédicte;STENGEL
    Producers
    Name Role
    ASSISTANCE PUBLIQUE HOPITAUX DE PARIS (AP-HP) sponsor
    Funding Agency/Sponsor
    Name
    INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM)
    MINISTERE DE L’ENSEIGNEMENT SUPERIEUR, DE LA RECHERCHE ET DE L’ESPACE
    MINISTERE DE LA TRANSITION ECOLOGIQUE, DE LA BIODIVERSITE ET DES NEGOCIATIONS INTERNATIONALES SUR LE CLIMAT ET LA NATURE
    MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES

    Study authorization

    Agency
    Agency name
    CNIL
    CPP

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2002-01-01 2004-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Interview","vocab":"CESSDA"},"value":"Interview with the participant (including clinical)"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health event/mortality

    Data Access

    Availability Status

    {"value":"Metadata-only access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_14cb"}]}

    Contacts

    Contacts
    Name Email
    Bénédicte;STENGEL benedicte.stengel@inserm.fr
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