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Familial Retinal Vein Occlusion

France, 2000 - 3000
Reference ID
FRESH-PEF60011-en
Producer(s)
Michel;PAQUES
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
Page views
42
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF60011-en
    Title

    Familial Retinal Vein Occlusion
    Abbreviation or Acronym

    OVR
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Paraclinical data (non-biological)','Paraclinical data (non-biological) : Imaging','Biological data','Participant-reported health data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Cardiology and vascular medicine health theme
    Ophthalmology health theme
    Retinal venous occlusions cim-11
    Socio-demographic and economic determinants: Employment health determinant
    Biological determinants: Genetic predisposition health determinant
    Socio-demographic and economic determinants health determinant
    Biological determinants health determinant
    Keywords
    urban population Health episodes rural population hospitalisation health system

    Coverage

    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Aged, 80 and over (80 years and more)","concept":{"vocab":"MeSH","vocabURI":"D000369"}}],"level_type_clusion_I":"General population","level_type_clusion_other":"","clusion_I":"At least 3 cases of retinal vein occlusion (RVO) in the immediate family (two cases if one occurs before the age of 30).","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Michel;PAQUES
    Producers
    Name Role
    INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM) sponsor
    Funding Agency/Sponsor
    Name
    MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES

    Study authorization

    Agency
    Agency name
    Other

    Sampling

    Sample frame

    Unit Type

    ['Medical-administrative database (patients, health insurance/mutual insurance)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2000-01-01 3000-01-01
    Time Method

    One-time cross-sectional study
    Mode of data collection
    • {"concept":{"vocabURI":"SelfAdministeredQuestionnaire","vocab":"CESSDA"},"value":"Self-administered questionnaire"}
    • {"concept":{"vocabURI":"Interview","vocab":"CESSDA"},"value":"Interview with the participant (including clinical)"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health event/mortality

    Data Access

    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}
    Restrictions

    To be decided if data may be used by academic teams To be decided if data may be used by industrial teams

    Contacts

    Contacts
    Name Email
    Michel;PAQUES michel.paques@gmail.com
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