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Iatrogenic effects in long-term following radiotherapy for a childhood skin hemangioma at Gustave Roussy between 1941 and 1973

France, 1985 - 3000
Reference ID
FRESH-PEF5802-en
Producer(s)
Florent;DE VATHAIRE
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
Page views
38
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF5802-en
    Title

    Iatrogenic effects in long-term following radiotherapy for a childhood skin hemangioma at Gustave Roussy between 1941 and 1973
    Abbreviation or Acronym

    ANGIO
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Paraclinical data (non-biological)','Paraclinical data (non-biological) : Imaging','Participant-reported health data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Oncology health theme
    Cardiology and vascular medicine health theme
    Haemangioma, NOS cim-11
    Benign neoplasm of endocrine glands cim-11
    Unspecified carcinoma of unspecified site cim-11
    Malignant neoplasms of breast cim-11
    Malignant melanoma, NOS cim-11
    Keywords
    hemangioma in childhood late effects radiotherapy iatrogenic effects adults

    Coverage

    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Infant, Newborn (birth to 28 days)","concept":{"vocab":"MeSH","vocabURI":"D007231"}},{"value":"Infant (28 days to 2 years)","concept":{"vocab":"MeSH","vocabURI":"D007223"}},{"value":"Child, Preschool (2 to 5 years)","concept":{"vocab":"MeSH","vocabURI":"D002675"}},{"value":"Child (6 to 12 years)","concept":{"vocab":"MeSH","vocabURI":"D002648"}},{"value":"Adolescent (13 to 18 years)","concept":{"vocab":"MeSH","vocabURI":"D000293"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"patients treated by radiotherapy for childhooh hemangioma","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Florent;DE VATHAIRE
    Producers
    Name Role
    INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM) sponsor
    Funding Agency/Sponsor
    Name
    ELECTRICITE DE FRANCE (EDF)
    FONDATION DE FRANCE
    LIGUE NATIONALE CONTRE LE CANCER (LNCC)
    Other Identifications/Acknowledgments
    Name
    FCCSS, EpiRadBio, CerebRad, Pirates, Swedish and French cohort of patients irradiated for hemangioma in childhood

    Study authorization

    Agency
    Agency name
    CNIL

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    1985-01-01 3000-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"SelfAdministeredQuestionnaire","vocab":"CESSDA"},"value":"Self-administered questionnaire"}
    • {"concept":{"vocabURI":"Interview","vocab":"CESSDA"},"value":"Interview with the participant (including clinical)"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health event/mortality

    Data Access

    Access conditions

    Data can be used (conditions for access to define)
    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}

    Contacts

    Contacts
    Name Email
    Florent;DE VATHAIRE florent.devathaire@gustaveroussy.fr
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