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Developmental trajectory study from childhood to adulthood in a cohort of EpiTED patients: Research prognostic, clinical and biological factors

France, 1997 - 2015
Reference ID
FRESH-PEF5642-en
Producer(s)
Amaria;BAGHDADLI
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
Page views
44
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF5642-en
    Title

    Developmental trajectory study from childhood to adulthood in a cohort of EpiTED patients: Research prognostic, clinical and biological factors
    Abbreviation or Acronym

    EpiTED
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Biological data','Participant-reported health data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Psychiatry health theme
    Neurodevelopmental disorders cim-11
    Socio-demographic and economic determinants health determinant
    Biological determinants: Genetic predisposition health determinant
    Behavioral determinants health determinant
    Biological determinants health determinant
    Keywords
    developmental trajectories autism Cohort quality of life

    Coverage

    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Child, Preschool (2 to 5 years)","concept":{"vocab":"MeSH","vocabURI":"D002675"}},{"value":"Child (6 to 12 years)","concept":{"vocab":"MeSH","vocabURI":"D002648"}},{"value":"Adolescent (13 to 18 years)","concept":{"vocab":"MeSH","vocabURI":"D000293"}},{"value":"Young Adult (19 to 24 years)","concept":{"vocab":"MeSH","vocabURI":"D055815"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"Inclusion criteria - Patients previously included in the cohort formed in 1997/1999 within the PHRC 96/97 network and having been followed for 10 years. - Adult patients (aged 18 years old and over)","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Amaria;BAGHDADLI
    Producers
    Name Role
    CENTRE HOSPITALIER UNIVERSITAIRE DE MONTPELLIER (CHU) sponsor
    Funding Agency/Sponsor
    Name
    AGENCE NATIONALE DE LA RECHERCHE (ANR)
    FONDATION D ENTREPRISE ORANGE
    MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES

    Study authorization

    Agency
    Agency name
    CNIL
    ANSM
    CPP

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    1997-01-01 2015-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"SelfAdministeredQuestionnaire","vocab":"CESSDA"},"value":"Self-administered questionnaire"}
    • {"concept":{"vocabURI":"Transcription","vocab":"CESSDA"},"value":"Converting or copying information into a structured record"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Quality of life/health perception

    Data Access

    Access conditions

    Access to data base is subject to approval of scientist in charge and sponsor of the study
    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}

    Contacts

    Contacts
    Name Email
    Amaria;BAGHDADLI a-baghdadli@chu-montpellier.fr
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