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Auvergne-Loire observatory on chronic inflammatory diseases of the musculoskeletal system occurring in childhood - Arthrites Juvéniles Idiopathiques cohort (long-term follow-up of children with juvenile idiopathic arthritis)

France, 2011 - 3000
Reference ID
FRESH-PEF5222-en
Producer(s)
Aurélie;CHAUSSET, Etienne;MERLIN
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
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  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF5222-en
    Title

    Auvergne-Loire observatory on chronic inflammatory diseases of the musculoskeletal system occurring in childhood - Arthrites Juvéniles Idiopathiques cohort (long-term follow-up of children with juvenile idiopathic arthritis)
    Abbreviation or Acronym

    APICALE-AJI
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Biological data','Participant-reported health data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Rheumatology health theme
    Diseases of the musculoskeletal system or connective tissue cim-11
    Environmental determinants: Climate health determinant
    Healthcare system determinants: Access to care health determinant
    Environmental determinants health determinant
    Keywords
    Very long-term progression of children with Juvenile Idiopathic Arthritis (AJI) transition period joint disease repercussions

    Coverage

    Geographic Coverage

    ['Auvergne Rhône-Alpes']
    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Child, Preschool (2 to 5 years)","concept":{"vocab":"MeSH","vocabURI":"D002675"}},{"value":"Child (6 to 12 years)","concept":{"vocab":"MeSH","vocabURI":"D002648"}},{"value":"Adolescent (13 to 18 years)","concept":{"vocab":"MeSH","vocabURI":"D000293"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"Children with Juvenile Idiopathic Arthritis (AJI) from the Auvergne-Loire region","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Aurélie;CHAUSSET
    Etienne;MERLIN
    Producers
    Name Role
    INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM) sponsor
    CENTRE HOSPITALIER UNIVERSITAIRE DE CLERMONT-FERRAND sponsor
    Funding Agency/Sponsor
    Name
    MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES

    Study authorization

    Agency
    Agency name
    CNIL

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2011-01-01 3000-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Transcription","vocab":"CESSDA"},"value":"Converting or copying information into a structured record"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health event/mortality Health care consumption and services

    Data Access

    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}

    Contacts

    Contacts
    Name Email
    Aurélie;CHAUSSET achausset@chu-clermontferrand.fr
    Etienne;MERLIN e_merlin@chu-clermontferrand.fr
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