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Physical and neurological becoming of highly premature children in the Aquitaine region

France, 2003 - 2012
Reference ID
FRESH-PEF3582-en
Producer(s)
Laurence;JOLY-PEDESPAN, Valériane;LEROY
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
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33
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Quality standards
  • Access policy
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF3582-en
    Title

    Physical and neurological becoming of highly premature children in the Aquitaine region
    Abbreviation or Acronym

    AQUIPAGE
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Participant-reported health data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Neurology health theme
    Paediatrics health theme
    Psychiatry health theme
    Behavioral determinants health determinant
    Biological determinants: Genetic predisposition health determinant
    Socio-demographic and economic determinants health determinant
    Biological determinants health determinant
    Keywords
    Prematurity natural history neurosensory troubles physical development anomalies speech and language disorders concentration disorders emotional development anomalies. development prognostic factors mobility

    Coverage

    Geographic Coverage

    ['Nouvelle-Aquitaine']
    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Infant, Newborn (birth to 28 days)","concept":{"vocab":"MeSH","vocabURI":"D007231"}},{"value":"Infant (28 days to 2 years)","concept":{"vocab":"MeSH","vocabURI":"D007223"}},{"value":"Child, Preschool (2 to 5 years)","concept":{"vocab":"MeSH","vocabURI":"D002675"}},{"value":"Child (6 to 12 years)","concept":{"vocab":"MeSH","vocabURI":"D002648"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"Living births, stillborn births between 24-33 weeks of amenorrhea, in the centers participating to the study","clusion_E":" congenital abnormalities."}

    Producers and sponsors

    Primary investigators
    Name
    Laurence;JOLY-PEDESPAN
    Valériane;LEROY
    Producers
    Name Role
    CENTRE HOSPITALIER UNIVERSITAIRE DE BORDEAUX sponsor
    Funding Agency/Sponsor
    Name
    MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES

    Study authorization

    Agency
    Agency name
    CNIL

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2003-01-01 2012-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Interview","vocab":"CESSDA"},"value":"Interview with the participant (including clinical)"}
    • {"concept":{"vocabURI":"MeasurementsAndTests.Psychological","vocab":"CESSDA"},"value":"Psychological tests/clinical scales (depression, cognition, quality of life, etc.)"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/mortality

    Quality standards

    Other quality statement

    ['Coherence request after computer data entry. Missing data checked with the original file. Doctors and subjects remainders for follow-up visits.']

    Access policy

    Completeness of Study Stored

    Data utilization possible for academic teams.

    Data Access

    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}
    Restrictions

    Additional access condition : analysis before inside the cohort

    Contacts

    Contacts
    Name Email
    Laurence;JOLY-PEDESPAN laurence.joly@chu-bordeaux.fr
    Valériane;LEROY valeriane.leroy@isped.u-bordeaux.fr
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