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French Registry for Rare Peritoneal Tumors

France, 2010 - 3000
Reference ID
FRESH-PEF29212-en
Producer(s)
François-Noël;GILLY, Cécile;ODIN, Laurent;VILLENEUVE
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
Page views
38
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Quality standards
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF29212-en
    Title

    French Registry for Rare Peritoneal Tumors
    Abbreviation or Acronym

    RENAPE
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Biological data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Oncology health theme
    Diseases of peritoneum cim-11
    Neoplasms cim-11
    Mucocele of appendix cim-11
    Certain specified disorders of peritoneum or retroperitoneum cim-11
    Malignant neoplasms, stated or presumed to be primary, of specified sites, except of lymphoid, haematopoietic, central nervous system or related tissues cim-11
    Malignant neoplasms of independent, multiple primary sites cim-11
    Benign fibrohistiocytic tumour of retroperitoneum or peritoneum cim-11
    Biological determinants: Genetic predisposition health determinant
    Environmental determinants: Other health determinant
    Healthcare system determinants: Access to care health determinant
    Socio-demographic and economic determinants: Employment health determinant
    Biological determinants health determinant
    Environmental determinants health determinant
    Socio-demographic and economic determinants health determinant
    Keywords
    epidemiological observation peritoneal multicentric rare cancers hyperthermic intraperitoneal chemotherapy HIPEC cytoreductive surgery clinical registry

    Coverage

    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Child (6 to 12 years)","concept":{"vocab":"MeSH","vocabURI":"D002648"}},{"value":"Adolescent (13 to 18 years)","concept":{"vocab":"MeSH","vocabURI":"D000293"}},{"value":"Young Adult (19 to 24 years)","concept":{"vocab":"MeSH","vocabURI":"D055815"}},{"value":"Adult (25 to 44 years)","concept":{"vocab":"MeSH","vocabURI":"D000328"}},{"value":"Middle Aged (45 to 64 years)","concept":{"vocab":"MeSH","vocabURI":"D008875"}},{"value":"Aged (65 to 79 years)","concept":{"vocab":"MeSH","vocabURI":"D000368"}},{"value":"Aged, 80 and over (80 years and more)","concept":{"vocab":"MeSH","vocabURI":"D000369"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"Patients with rare peritoneal cancer: peritoneal mesothelioma; pseudomyxoma peritonei; gelatinous disease of the peritoneum; primary serous carcinoma of the peritoneum. desmoplastic small round cell tumour; peritoneal psammocarcinoma and diffuse leiomyomatosis. Disease confirmed histologically.","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    François-Noël;GILLY
    Cécile;ODIN
    Laurent;VILLENEUVE
    Producers
    Name Role
    HOSPICES CIVILS DE LYON (HCL) sponsor
    Funding Agency/Sponsor
    Name
    INSTITUT NATIONAL DU CANCER (INCA)
    MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES
    Other Identifications/Acknowledgments
    Name
    EURACAN

    Study authorization

    Agency
    Agency name
    CNIL

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2010-01-01 3000-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Transcription","vocab":"CESSDA"},"value":"Converting or copying information into a structured record"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health event/mortality

    Quality standards

    Other quality statement

    ['Data management team; quality controls']

    Data Access

    Access conditions

    Contact the principal investigator
    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}

    Contacts

    Contacts
    Name Email
    Olivier;GLEHEN olivier.glehen@chu-lyon.fr
    François-Noël;GILLY francois-noel.gilly@univ-lyon1.fr
    Cécile;ODIN cecile.odin@chu-lyon.fr
    Laurent;VILLENEUVE laurent.villeneuve@chu-lyon.fr
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