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Gironde register of hematologic malignancies

France, 2002 - 2008
Reference ID
FRESH-PEF226-en
Producer(s)
Alain;MONNEREAU
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
Page views
40
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Quality standards
  • Access policy
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF226-en
    Title

    Gironde register of hematologic malignancies
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Paraclinical data (non-biological)','Paraclinical data (non-biological) : Imaging','Paraclinical data (non-biological) : Other','Biological data','Socio-demographic data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Hematology health theme
    Oncology health theme
    Malignant haematopoietic neoplasms without further specification cim-11
    Keywords
    Surveillance system hematological malignancies incidence data frequency clusters distribution side effects

    Coverage

    Geographic Coverage

    ['Nouvelle-Aquitaine']
    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Infant, Newborn (birth to 28 days)","concept":{"vocab":"MeSH","vocabURI":"D007231"}},{"value":"Infant (28 days to 2 years)","concept":{"vocab":"MeSH","vocabURI":"D007223"}},{"value":"Child, Preschool (2 to 5 years)","concept":{"vocab":"MeSH","vocabURI":"D002675"}},{"value":"Child (6 to 12 years)","concept":{"vocab":"MeSH","vocabURI":"D002648"}},{"value":"Adolescent (13 to 18 years)","concept":{"vocab":"MeSH","vocabURI":"D000293"}},{"value":"Young Adult (19 to 24 years)","concept":{"vocab":"MeSH","vocabURI":"D055815"}},{"value":"Adult (25 to 44 years)","concept":{"vocab":"MeSH","vocabURI":"D000328"}},{"value":"Middle Aged (45 to 64 years)","concept":{"vocab":"MeSH","vocabURI":"D008875"}},{"value":"Aged (65 to 79 years)","concept":{"vocab":"MeSH","vocabURI":"D000368"}},{"value":"Aged, 80 and over (80 years and more)","concept":{"vocab":"MeSH","vocabURI":"D000369"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"Since January 1st 2002, the registry has included all incident cases of hematological malignancies (leukemia, lymphoma, myeloma, myelodysplastic syndrome, myeloproliferative syndrome) in subjects living on a regular basis in the Gironde at the time of diagnosis.","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Alain;MONNEREAU
    Producers
    Name Role
    INSTITUT BERGONIE sponsor
    Funding Agency/Sponsor
    Name
    INSTITUT BERGONIE
    INSTITUT NATIONAL DU CANCER (INCA)
    SANTE PUBLIQUE FRANCE

    Study authorization

    Agency
    Agency name
    CNIL

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Free access
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2002-01-01 2008-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health care consumption and services Others

    Quality standards

    Quality standards
    Standard
    ['International Classification of Diseases applied to oncology (3rd version)']

    Access policy

    Notes

    Transmission to the Francim national base and then to the French Institute for Public Health Surveillance (InVS).

    Data Access

    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}

    Contacts

    Contacts
    Name Email
    Alain;MONNEREAU monnereau@bergonie.org
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