Home / Central Data Catalog / FRESH-PEF203-EN
central

Registre Régional des Hémopathies Malignes de Basse Normandie (registre qualifié)

France, 1997 - 2014
Reference ID
FRESH-PEF203-en
Producer(s)
Edouard;CORNET, Xavier;TROUSSARD
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
Page views
34
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Study authorization
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Quality standards
  • Data Access
  • Contacts

    • Identification

    Survey ID number

    FRESH-PEF203-en
    Title

    Registre Régional des Hémopathies Malignes de Basse Normandie (registre qualifié)
    Abbreviation or Acronym

    RRHMBN
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Paraclinical data (non-biological)','Biological data','Socio-demographic data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Oncology health theme
    Hematology health theme
    Neoplasms of haematopoietic or lymphoid tissues cim-11
    Healthcare system determinants: Access to care health determinant
    Keywords
    Epidemiology Specialist Registry Lower Normandy

    Coverage

    Geographic Coverage

    ['Normandie']
    Universe

    {"level_sex_clusion_I":[{"value":"Male","concept":{"vocab":"MeSH","vocabURI":"D008297"}},{"value":"Female","concept":{"vocab":"MeSH","vocabURI":"D005260"}}],"level_age_clusion_I":[{"value":"Infant, Newborn (birth to 28 days)","concept":{"vocab":"MeSH","vocabURI":"D007231"}},{"value":"Infant (28 days to 2 years)","concept":{"vocab":"MeSH","vocabURI":"D007223"}},{"value":"Child, Preschool (2 to 5 years)","concept":{"vocab":"MeSH","vocabURI":"D002675"}},{"value":"Child (6 to 12 years)","concept":{"vocab":"MeSH","vocabURI":"D002648"}},{"value":"Adolescent (13 to 18 years)","concept":{"vocab":"MeSH","vocabURI":"D000293"}},{"value":"Young Adult (19 to 24 years)","concept":{"vocab":"MeSH","vocabURI":"D055815"}},{"value":"Adult (25 to 44 years)","concept":{"vocab":"MeSH","vocabURI":"D000328"}},{"value":"Middle Aged (45 to 64 years)","concept":{"vocab":"MeSH","vocabURI":"D008875"}},{"value":"Aged (65 to 79 years)","concept":{"vocab":"MeSH","vocabURI":"D000368"}},{"value":"Aged, 80 and over (80 years and more)","concept":{"vocab":"MeSH","vocabURI":"D000369"}}],"level_type_clusion_I":"Patients population","level_type_clusion_other":"","clusion_I":"All incident cases of hematological malignancies (HMs) as well as any previous personal HMs, previous and subsequent personal solid cancers and any family solid cancers or HMs.","clusion_E":""}

    Producers and sponsors

    Primary investigators
    Name
    Edouard;CORNET
    Xavier;TROUSSARD
    Producers
    Name Role
    CENTRE HOSPITALIER UNIVERSITAIRE DE CAEN NORMANDIE (CHU) sponsor
    Funding Agency/Sponsor
    Name
    CENTRE HOSPITALIER UNIVERSITAIRE DE CAEN NORMANDIE (CHU)
    INSTITUT NATIONAL DU CANCER (INCA)
    LIGUE NATIONALE CONTRE LE CANCER (LNCC)
    SANTE PUBLIQUE FRANCE
    UNIVERSITE DE CAEN NORMANDIE

    Study authorization

    Agency
    Agency name
    CNIL

    Sampling

    Sample frame

    Unit Type

    ['']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    1997-01-01 2014-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Transcription","vocab":"CESSDA"},"value":"Converting or copying information into a structured record"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health event/mortality Others

    Quality standards

    Quality standards
    Standard
    ['ICDO-3 classification and ADICAP']

    Data Access

    Access conditions

    Contact the scientist in charge
    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}

    Contacts

    Contacts
    Name Email
    Edouard;CORNET cornet-e@chu-caen.fr
    Xavier;TROUSSARD troussard-x@chu-caen.fr
    Back to Catalog