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Finistère Registry for Digestive Tumours (Certified Registry 2013-2016)

France, 1984 - 3000
Reference ID
FRESH-PEF228-en
Producer(s)
Mélanie;CARIOU-DAOULAS, Jean-Baptiste;NOUSBAUM, Michel;ROBASZKIEWICZ
Metadata
DDI/XML JSON
Study website Interactive tools
Created on
Feb 18, 2026
Last modified
Feb 18, 2026
Page views
2
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Quality standards
  • Data Access
  • Contacts
  • Metadata production

    • Identification

    Survey ID number

    FRESH-PEF228-en
    Title

    Finistère Registry for Digestive Tumours (Certified Registry 2013-2016)
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Biological data','Socio-demographic data','Paraclinical data (non-biological) : Imaging']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Oncology health theme
    Gastroenterology health theme
    Hepatology health theme

    Coverage

    Geographic Coverage

    ['Bretagne']
    Universe

    {
    "level_sex_clusion_I": [
    {
    "value": "Male",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D008297"
    }
    },
    {
    "value": "Female",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D005260"
    }
    }
    ],
    "level_age_clusion_I": [
    {
    "value": "Infant, Newborn (birth to 28 days)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D007231"
    }
    },
    {
    "value": "Infant (28 days to 2 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D007223"
    }
    },
    {
    "value": "Child, Preschool (2 to 5 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D002675"
    }
    },
    {
    "value": "Child (6 to 12 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D002648"
    }
    },
    {
    "value": "Young Adult (19 to 24 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D055815"
    }
    },
    {
    "value": "Adult (25 to 44 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D000328"
    }
    },
    {
    "value": "Middle Aged (45 to 64 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D008875"
    }
    },
    {
    "value": "Aged (65 to 79 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D000368"
    }
    },
    {
    "value": "Aged, 80 and over (80 years and more)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D000369"
    }
    }
    ],
    "level_type_clusion_I": [
    "Patients population"
    ],
    "level_type_clusion_other": "",
    "clusion_I": "The registry identifies all patients affected with a primitive malignant tumour, including in situ cancer of the digestive tract, liver, pancreas, biliary tracts, peritoneum and retroperitoneal tissue. The date of incidence must fall after 01 January 1984. Patients must live in Finistère and consent to the registration of their cases.",
    "clusion_E": ""
    }

    Producers and sponsors

    Primary investigators
    Name
    Mélanie;CARIOU-DAOULAS
    Jean-Baptiste;NOUSBAUM
    Michel;ROBASZKIEWICZ
    Producers
    Name Role
    CENTRE HOSPITALIER REGIONAL ET UNIVERSITAIRE DE BREST (CHRU) sponsor
    Funding Agency/Sponsor
    Name
    INSTITUT NATIONAL DU CANCER (INCA)
    LIGUE NATIONALE CONTRE LE CANCER (LNCC)
    SANTE PUBLIQUE FRANCE

    Sampling

    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    1984-01-01 3000-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Transcription","vocab":"CESSDA"},"value":"Converting or copying information into a structured record"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health event/mortality

    Quality standards

    Quality standards
    Standard
    ['ICD-O\'3']

    Data Access

    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}

    Contacts

    Contacts
    Name Email
    Mélanie;CARIOU-DAOULAS registre-du-finistere@laposte.net
    Jean-Baptiste;NOUSBAUM jean-baptiste.nousbaum@chu-brest.fr
    Michel;ROBASZKIEWICZ michel.robaszkiewicz@chu-brest.fr

    Metadata production

    DDI Document ID

    FRESH-PEF228-en
    Producers
    Name Affiliation
    Michel ROBASZKIEWICZ CENTRE HOSPITALIER REGIONAL ET UNIVERSITAIRE DE BREST (CHRU)
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