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NATIONAL REAL-LIFE STUDY OF LYMPHOMAS

France, 2018 - 2028
Reference ID
FRESH-PEF73987-en
Producer(s)
Hervé;GHESQUIERES, Fanny;CHERBLANC
Metadata
DDI/XML JSON
Created on
Dec 18, 2025
Last modified
Dec 18, 2025
Page views
2
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Sampling
  • Survey instrument
  • Data collection
  • Quality standards
  • Data Access
  • Contacts
  • Metadata production

    • Identification

    Survey ID number

    FRESH-PEF73987-en
    Title

    NATIONAL REAL-LIFE STUDY OF LYMPHOMAS
    Abbreviation or Acronym

    REALYSA
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Participant-reported health data','Biological data','Socio-demographic data','Paraclinical data (non-biological) : Imaging']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Hematology health theme
    Neoplasms of haematopoietic or lymphoid tissues cim-11
    Socio-demographic and economic determinants health determinant
    Behavioral determinants health determinant
    Behavioral determinants: Eating habits health determinant
    Environmental determinants health determinant
    Healthcare system determinants: Use of care health determinant
    Socio-demographic and economic determinants: Employment health determinant
    Healthcare system determinants health determinant
    Keywords
    Prognostic factors Therapeutic management Biobanks Prospective study Multicentric Environmental exposure Occupational exposure Care pathway Pesticides

    Coverage

    Universe

    {
    "level_sex_clusion_I": [
    {
    "value": "Male",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D008297"
    }
    },
    {
    "value": "Female",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D005260"
    }
    }
    ],
    "level_age_clusion_I": [
    {
    "value": "Young Adult (19 to 24 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D055815"
    }
    },
    {
    "value": "Adult (25 to 44 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D000328"
    }
    },
    {
    "value": "Middle Aged (45 to 64 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D008875"
    }
    },
    {
    "value": "Aged (65 to 79 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D000368"
    }
    },
    {
    "value": "Aged, 80 and over (80 years and more)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D000369"
    }
    }
    ],
    "level_type_clusion_I": "Patients population",
    "level_type_clusion_other": "",
    "clusion_I": "",
    "clusion_E": ""
    }

    Producers and sponsors

    Primary investigators
    Name
    Hervé;GHESQUIERES
    Fanny;CHERBLANC
    Producers
    Name
    HOSPICES CIVILS DE LYON

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    2018-01-01 2028-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"SelfAdministeredQuestionnaire","vocab":"CESSDA"},"value":"Self-administered questionnaire"}
    • {"concept":{"vocabURI":"Interview","vocab":"CESSDA"},"value":"Interview with the participant (including clinical)"}

    Quality standards

    Other quality statement

    ['Data validation within eCRF (queries), consistency test in SAS, quality control by sampling with comparison to the source file']

    Data Access

    Access conditions

    All projects must be validated by the REALYSA Scientific Committee and approved by the LYSA Board, on the basis of a synopsis (available on request). The REALYSA Scientific Committee meets quarterly. A contract will be drawn up for each project.
    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}

    Contacts

    Contacts
    Name Email
    Fanny;CHERBLANC fanny.cherblanc@lysarc.org

    Metadata production

    DDI Document ID

    FRESH-PEF73987-en
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