Pediatric cancer registry of western France
France, 2013
Identification
FRESH-PEF73258-en
Pediatric cancer registry of western France
ReCaPGO
| Name | Country code |
|---|---|
| France | fr |
['Clinical data','Biological data']
Individuals
Scope
| Topic | Vocabulary |
|---|---|
| Oncology | health theme |
| Hematology | health theme |
| Paediatrics | health theme |
| Malignant neoplasms of ill-defined or unspecified primary sites | cim-11 |
Coverage
['Nouvelle-Aquitaine Bretagne Centre-Val de Loire Normandie Pays de la Loire']
{
"level_sex_clusion_I": [
{
"value": "Male",
"concept": {
"vocab": "MeSH",
"vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D008297"
}
},
{
"value": "Female",
"concept": {
"vocab": "MeSH",
"vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D005260"
}
}
],
"level_age_clusion_I": [
{
"value": "Infant, Newborn (birth to 28 days)",
"concept": {
"vocab": "MeSH",
"vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D007231"
}
},
{
"value": "Infant (28 days to 2 years)",
"concept": {
"vocab": "MeSH",
"vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D007223"
}
},
{
"value": "Child, Preschool (2 to 5 years)",
"concept": {
"vocab": "MeSH",
"vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D002675"
}
},
{
"value": "Child (6 to 12 years)",
"concept": {
"vocab": "MeSH",
"vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D002648"
}
},
{
"value": "Young Adult (19 to 24 years)",
"concept": {
"vocab": "MeSH",
"vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D055815"
}
}
],
"level_type_clusion_I": "Patients population",
"level_type_clusion_other": "",
"clusion_I": "",
"clusion_E": ""
}
Producers and sponsors
| Name |
|---|
| Isabelle;PELLIER |
| Name |
|---|
| AGENCE NATIONALE DE LA RECHERCHE (ANR) |
Sampling
Sample frame
['Through organizations (health services or institutions, schools, businesses, etc.)']
['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']
Survey instrument
Observational Study
Data collection
| Start |
|---|
| 2013-01-01 |
- {"concept":{"vocabURI":"Interview","vocab":"CESSDA"},"value":"Interview with the participant (including clinical)"}
Data Access
Each institution in the GOCE network participating in the ReCaPGO database has signed a consortium agreement specifying the terms of use by the institutions making up the GOCE network of the data and results linked to ReCaPGO, as well as the authorisations to exploit and transfer the clinical data. This consortium was signed by all the general managements of the GOCE institutions (CHU Angers, CHU Brest, CHU Caen, CHU Nantes, CHU Poitiers, CHU Rennes, CHU Tours, Institut de cancérologie de l'Ouest (ICO) Nantes, Centre Eugène Marquis Rennes) between March 18, 2014 and June 04, 2014 for a renewable 5-year period. In order to participate in the ReCaPGO registry, each applicant must send a written application with supporting arguments to the coordinator of the GOCE Scientific Advisory Board, who will present it to all the medical representatives. Acceptance of a new Center to the Registry will require the unanimous agreement of the Centers already participating in the Registry. This will be formalised in an amendment to the present consortium, signed by all parties.
{"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}
Contacts
| Name | |
|---|---|
| Isabelle;PELLIER | IsPellier@chu-angers.fr |
Metadata production
FRESH-PEF73258-en