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Multicentric prospective cohort of children and adolescents malignant hemopathies

France, 2004
Reference ID
FRESH-PEF3269-en
Producer(s)
Gérard;MICHEL, Marie-Claude;SIMEONI, Pascal;AUQUIER
Metadata
DDI/XML JSON
Created on
Dec 18, 2025
Last modified
Dec 18, 2025
Page views
3
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access
  • Contacts
  • Metadata production

    • Identification

    Survey ID number

    FRESH-PEF3269-en
    Title

    Multicentric prospective cohort of children and adolescents malignant hemopathies
    Abbreviation or Acronym

    LEA
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Participant-reported health data','Biological data','Paraclinical data (non-biological) : Imaging']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Oncology health theme
    Hematology health theme
    Paediatrics health theme
    Diseases of the blood or blood-forming organs cim-11
    Healthcare system determinants: Use of care health determinant
    Healthcare system determinants health determinant
    Keywords
    Malignant hemopathies Leukemia Lymphoma Sequelae of leukemia or its treatment long term adverse side effects children adolescents

    Coverage

    Universe

    {
    "level_sex_clusion_I": [
    {
    "value": "Male",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D008297"
    }
    },
    {
    "value": "Female",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D005260"
    }
    }
    ],
    "level_age_clusion_I": [
    {
    "value": "Child, Preschool (2 to 5 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D002675"
    }
    },
    {
    "value": "Child (6 to 12 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D002648"
    }
    },
    {
    "value": "Young Adult (19 to 24 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D055815"
    }
    },
    {
    "value": "Adult (25 to 44 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D000328"
    }
    },
    {
    "value": "Middle Aged (45 to 64 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D008875"
    }
    }
    ],
    "level_type_clusion_I": "Patients population",
    "level_type_clusion_other": "",
    "clusion_I": "",
    "clusion_E": ""
    }

    Producers and sponsors

    Primary investigators
    Name
    Gérard;MICHEL
    Marie-Claude;SIMEONI
    Pascal;AUQUIER
    Producers
    Name
    ASSISTANCE PUBLIQUE HÔPITAUX DE MARSEILLE
    Funding Agency/Sponsor
    Name
    BRISTOL MYERS SQUIBB PHARMA FRANCE S.A
    MSD FRANCE
    GUERIDUNCANCER
    ASSOCIATION LAURETTE FUGAIN
    LIGUE NATIONALE CONTRE LE CANCER (LNCC)
    AGENCE DE LA BIOMEDECINE
    AGENCE NATIONALE DE LA RECHERCHE (ANR)
    AGENCE REGIONALE D'HOSPITALISATION (ARH)
    ASSISTANCE PUBLIQUE HÔPITAUX DE MARSEILLE
    INSTITUT NATIONAL DU CANCER (INCA)
    MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES
    REGION PACA

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start
    2004-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"MeasurementsAndTests.Psychological","vocab":"CESSDA"},"value":"Psychological tests/clinical scales (depression, cognition, quality of life, etc.)"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Quality of life/health perception

    Data Access

    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}

    Contacts

    Contacts
    Name Email
    Gérard;MICHEL gmichel@ap-hm.fr
    Marie-Claude;SIMEONI marie-claude.simeoni@univ-amu.fr
    Pascal;AUQUIER pascal.auquier@univ-amu.fr

    Metadata production

    DDI Document ID

    FRESH-PEF3269-en
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