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French Registry for Rare Peritoneal Tumors

France, 2010
Reference ID
FRESH-PEF29212-en
Producer(s)
François-Noël;GILLY, Laurent;VILLENEUVE, Cécile;ODIN
Metadata
DDI/XML JSON
Created on
Dec 18, 2025
Last modified
Dec 18, 2025
Page views
2
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Quality standards
  • Data Access
  • Contacts
  • Metadata production

    • Identification

    Survey ID number

    FRESH-PEF29212-en
    Title

    French Registry for Rare Peritoneal Tumors
    Abbreviation or Acronym

    RENAPE
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Biological data']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Oncology health theme
    Diseases of peritoneum cim-11
    Neoplasms cim-11
    Mucocele of appendix cim-11
    Certain specified disorders of peritoneum or retroperitoneum cim-11
    Malignant neoplasms, stated or presumed to be primary, of specified sites, except of lymphoid, haematopoietic, central nervous system or related tissues cim-11
    Malignant neoplasms of independent, multiple primary sites cim-11
    Benign fibrohistiocytic tumour of retroperitoneum or peritoneum cim-11
    Biological determinants: Genetic predisposition health determinant
    Environmental determinants: Other health determinant
    Socio-demographic and economic determinants: Employment health determinant
    Biological determinants health determinant
    Environmental determinants health determinant
    Socio-demographic and economic determinants health determinant
    Keywords
    epidemiological observation peritoneal multicentric rare cancers hyperthermic intraperitoneal chemotherapy HIPEC cytoreductive surgery clinical registry

    Coverage

    Universe

    {
    "level_sex_clusion_I": [
    {
    "value": "Male",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D008297"
    }
    },
    {
    "value": "Female",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D005260"
    }
    }
    ],
    "level_age_clusion_I": [
    {
    "value": "Child (6 to 12 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D002648"
    }
    },
    {
    "value": "Young Adult (19 to 24 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D055815"
    }
    },
    {
    "value": "Adult (25 to 44 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D000328"
    }
    },
    {
    "value": "Middle Aged (45 to 64 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D008875"
    }
    },
    {
    "value": "Aged (65 to 79 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D000368"
    }
    },
    {
    "value": "Aged, 80 and over (80 years and more)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D000369"
    }
    }
    ],
    "level_type_clusion_I": "Patients population",
    "level_type_clusion_other": "",
    "clusion_I": "",
    "clusion_E": ""
    }

    Producers and sponsors

    Primary investigators
    Name
    François-Noël;GILLY
    Laurent;VILLENEUVE
    Cécile;ODIN
    Producers
    Name
    HOSPICES CIVILS DE LYON
    Funding Agency/Sponsor
    Name
    INSTITUT NATIONAL DU CANCER (INCA)
    MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES

    Sampling

    Sample frame

    Unit Type

    ['Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start
    2010-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Transcription","vocab":"CESSDA"},"value":"Converting or copying information into a structured record"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health event/mortality

    Quality standards

    Other quality statement

    ['Data management team; quality controls']

    Data Access

    Access conditions

    Contact the principal investigator
    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}

    Contacts

    Contacts
    Name Email
    Olivier;GLEHEN olivier.glehen@chu-lyon.fr
    François-Noël;GILLY francois-noel.gilly@univ-lyon1.fr
    Laurent;VILLENEUVE laurent.villeneuve@chu-lyon.fr
    Cécile;ODIN cecile.odin@chu-lyon.fr

    Metadata production

    DDI Document ID

    FRESH-PEF29212-en
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