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Longitudinal Study of Patients with Epilepsy: Medical and Social Outcome Study

France, 1995 - 1996
Reference ID
FRESH-PEF9316-en
Producer(s)
Pierre;JALLON
Metadata
DDI/XML JSON
Created on
Dec 15, 2025
Last modified
Dec 15, 2025
Page views
13
  • Identification
  • Scope
  • Coverage
  • Producers and sponsors
  • Sampling
  • Survey instrument
  • Data collection
  • Study activities
  • Data Access
  • Metadata production

    • Identification

    Survey ID number

    FRESH-PEF9316-en
    Title

    Longitudinal Study of Patients with Epilepsy: Medical and Social Outcome Study
    Abbreviation or Acronym

    C.A.R.O.L.E: Active network coordination of longitudinal epilepsy observatory
    Country
    Name Country code
    France fr
    Kind of Data

    ['Clinical data','Participant-reported health data','Paraclinical data (non-biological) : Imaging','Paraclinical data (non-biological) : Function testing']
    Unit of Analysis

    Individuals

    Scope

    Topics
    Topic Vocabulary
    Neurology health theme
    Oligodendroglioma, anaplastic cim-11
    Oligoastrocytoma, NOS cim-11
    Glioblastoma of brain cim-11
    Keywords
    First seizure drug-resistant crisis

    Coverage

    Universe

    {
    "level_sex_clusion_I": [
    {
    "value": "Male",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D008297"
    }
    },
    {
    "value": "Female",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D005260"
    }
    }
    ],
    "level_age_clusion_I": [
    {
    "value": "Child, Preschool (2 to 5 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D002675"
    }
    },
    {
    "value": "Child (6 to 12 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D002648"
    }
    },
    {
    "value": "Young Adult (19 to 24 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D055815"
    }
    },
    {
    "value": "Adult (25 to 44 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D000328"
    }
    },
    {
    "value": "Middle Aged (45 to 64 years)",
    "concept": {
    "vocab": "MeSH",
    "vocabURI": "http:\/\/id.nlm.nih.gov\/mesh\/D008875"
    }
    }
    ],
    "level_type_clusion_I": "Patients population",
    "level_type_clusion_other": "",
    "clusion_I": "",
    "clusion_E": ""
    }

    Producers and sponsors

    Primary investigators
    Name
    Pierre;JALLON
    Producers
    Name
    FONDATION FRANCAISE POUR LA RECHERCHE SUR L'EPILEPSIE (FFRE)
    Funding Agency/Sponsor
    Name
    FONDATION FRANCAISE POUR LA RECHERCHE SUR L'EPILEPSIE (FFRE)

    Sampling

    Sample frame

    Unit Type

    ['Through independent healthcare practitioners Through organizations (health services or institutions, schools, businesses, etc.)']
    Sampling Procedure

    ['{"concept":{"vocabURI":"Other","vocab":"CESSDA"},"value":"Other"}']

    Survey instrument

    Questionnaires

    Access on specific project only
    Methodology notes

    Observational Study

    Data collection

    Dates of Data Collection
    Start End
    1995-01-01 1996-01-01
    Mode of data collection
    • {"concept":{"vocabURI":"Transcription","vocab":"CESSDA"},"value":"Converting or copying information into a structured record"}
    • {"concept":{"vocabURI":"Interview","vocab":"CESSDA"},"value":"Interview with the participant (including clinical)"}

    Study activities

    Study activities
    Type
    primary evaluation
    Description
    Health event/morbidity Health event/mortality

    Data Access

    Access conditions

    Contact the principal investigator
    Availability Status

    {"value":"Restricted access","extLink":[{"title":"COAR","uri":"http://purl.org/coar/access_right/c_16ec"}]}

    Metadata production

    DDI Document ID

    FRESH-PEF9316-en
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