{"study_desc":{"title_statement":{"idno":"FRESH-PEF74150-en","IDno":{"metadata_no":[{"agency":"PEF","code":"74150"},{"agency":"FReSH","code":"FRESH-PEF74150"}]},"title":"Study of the natural history of Alport Syndrome by establishment of an International database","alternate_title":"RaDiCo-EURBIO-Alport"},"study_authorization":{"agency":[{"name":"CNIL"},{"name":"CPP"},{"name":"CESREES"}]},"authoring_entity":[{"name":"Laurence;HEIDET","firstname":"Laurence","lastname":"HEIDET","type":"investigator","extlink":[{"title":"ROR","uri":"https:\/\/ror.org\/00pg5jh14","role":"organisation id"},{"title":"SIREN","uri":"267500452","role":"organisation id"},{"uri":"0000-0002-1362-5515","role":"pi id","title":"ORCID"},{"uri":"169607003","role":"pi id","title":"IdRef"}],"email":"laurence.heidet@aphp.fr","affiliationName":"ASSISTANCE PUBLIQUE HOPITAUX DE PARIS 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