Clinical biological database of the Sarcoma network FRESH-PEF73354-en Stéphanie HOPPE Clinical biological database of the Sarcoma network BCB sarcomes FRESH-PEF73354-en 73354 FRESH-PEF73354 Simone MATHOULIN-PELISSIER Jean-Michel COINDRE INSTITUT BERGONIE Epidemiology France Portal (PEF) INSTITUT NATIONAL DU CANCER (INCA) null Simone;MATHOULIN-PELISSIER Jean-Michel;COINDRE sarcomas networks expertise epidemiological and clinical research Oncology Malignant neoplasms, stated or presumed to be primary, of specified sites, except of lymphoid, haematopoietic, central nervous system or related tissues The objective of the programme is to improve quality in the collection of samples and data, the design of new modules and tools, and improve interoperability to improve epidemiological, clinical, fundamental and translational research and medical practices in these pathologies. Three areas of work have been defined: - WP1: data collection and data management - WP2: development of the clinico-biological sarcoma database - WP3: communication. null France Individuals Patients population Male Female Infant, Newborn (birth to 28 days) Infant (28 days to 2 years) Child, Preschool (2 to 5 years) Child (6 to 12 years) Young Adult (19 to 24 years) Adult (25 to 44 years) Middle Aged (45 to 64 years) Aged (65 to 79 years) Aged, 80 and over (80 years and more) Patients with soft tissue and visceral sarcomas included in one of the existing databases: RRePS/NetSarc, Conticabase and ConticaGist Clinical data Biological data Socio-demographic data Database training for the different users. There is a quality procedure guide (control of duplicates cases to be deleted missing data cases to be reviewed in third reading consistency control between variables). External audits of the centres are carried out for the quality of the data Health event/morbidity Health event/mortality Others Other >= 20000 individuals Converting or copying information into a structured record Observational Study Observational Study Morbidity registry Conticabase and conticaGist contain data from approximately 13,000 patients and the RRePS database contains data from approximately 8,500 patients Unknown Restricted access There are: 1/ A charter for the use of the websites and the shared database of the sarcoma RRePS and NetSarc reference networks 2/ A charter for conticanet: 'Definition of rules for access and use of data and materiel among CTCN partners' Access on specific project only