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<docDscr>
  <citation>
    <titlStmt>
      <titl>General public perceptions, knowledge and attitudes towards Alzheimer's disease</titl>
      <IDNo>FRESH-PEF73148-en</IDNo>
    </titlStmt>
    <prodStmt>
      <producer abbr="" affiliation="SANTE PUBLIQUE FRANCE" role="">Christophe LEON</producer>
    </prodStmt>
    <verStmt>
      <version></version>
    </verStmt>
  </citation>
</docDscr>
<stdyDscr>
  <citation>
    <titlStmt>
      <titl>
                General public perceptions, knowledge and attitudes towards Alzheimer's disease            </titl>
      <altTitl>
                    DEOMA                </altTitl>
      <IDNo agency="FReSH-lang">
                FRESH-PEF73148-en            </IDNo>
      <IDNo agency="PEF">
                    73148                </IDNo>
      <IDNo agency="FReSH">
                    FRESH-PEF73148                </IDNo>
    </titlStmt>
    <rspStmt>
      <AuthEnty>
                    Christophe LEON                                                                                                                            </AuthEnty>
      <AuthEnty affiliation="SANTE PUBLIQUE FRANCE">
        <ExtLink title="ROR" URI="https://ror.org/00dfw9p58" role="organisation id"/>
        <ExtLink title="SIREN" URI="130022338" role="organisation id"/>
      </AuthEnty>
      <othId affiliation="2008-2012 Alzheimer Plan" type="collaboration">
                                    </othId>
    </rspStmt>
    <prodStmt>
      <producer role="sponsor">
                                            SANTE PUBLIQUE FRANCE                    
                                    </producer>
      <prodPlac>
                Epidemiology France Portal (PEF)            </prodPlac>
      <fundAg>
                                            SANTE PUBLIQUE FRANCE                    
                                    </fundAg>
    </prodStmt>
    <distStmt>
      <distrbtr abbr="null">
                    null</distrbtr>
      <contact affiliation="SANTE PUBLIQUE FRANCE" email="christophe.leon@santepubliquefrance.fr">
                    Christophe;LEON
                                            <ExtLink title="ROR" URI="https://ror.org/00dfw9p58" role="organisation id"/>
                                            <ExtLink title="SIREN" URI="130022338" role="organisation id"/>
                                    </contact>
      <depDate date="2026-06-17"/>
      <distDate date="2026-06-17"/>
    </distStmt>
    <biblCit format="">
            </biblCit>
    <holdings URI="null"/>
    <notes> </notes>
  </citation>
  <stdyInfo>
    <studyBudget/>
    <subject>
      <keyword vocab="" vocabURI="">
                    Social representations</keyword>
      <keyword vocab="" vocabURI="">
                    Surveys</keyword>
      <keyword vocab="" vocabURI="">
                    Health-care professionals</keyword>
      <keyword vocab="" vocabURI="">
                    General population</keyword>
      <keyword vocab="" vocabURI="">
                    Caregivers</keyword>
      <keyword vocab="" vocabURI="">
                    Patients</keyword>
      <keyword vocab="" vocabURI="">
                    Alzheimer's disease</keyword>
      <keyword vocab="" vocabURI="">
                    Opinions</keyword>
      <topcClas vocab="health theme">
                        Geriatrics                                                        <ExtLink title="ESV" URI="http://data.europa.eu/8mn/euroscivoc/d37e4d8c-a978-40c7-ba4f-eee841851073"/>
                                                            <ExtLink title="MeSH" URI="http://id.nlm.nih.gov/mesh/D005853"/>
                                                </topcClas>
      <topcClas vocab="health theme">
                        Neurology                                                        <ExtLink title="ESV" URI="http://data.europa.eu/8mn/euroscivoc/c4793dfe-e80e-49dd-9fcc-a1a742de1b25"/>
                                                            <ExtLink title="ESV" URI="http://data.europa.eu/8mn/euroscivoc/00a5c4f4-b7ee-41a4-bcdf-3a02e6be1660"/>
                                                            <ExtLink title="MeSH" URI="http://id.nlm.nih.gov/mesh/D009462"/>
                                                </topcClas>
      <topcClas vocab="cim-11">
                        Alzheimer disease                                            </topcClas>
      <topcClas vocab="health determinant">
                        Behavioral determinants                    </topcClas>
    </subject>
    <abstract contentType="purpose">Included in the third strategic main line of the 2008-2012 Alzheimer Plan entitled "mobilising for a societal challenge", all DEOMA studies and surveys aim to improve the "knowledge of how the disease is perceived". DEOMA offers a cross-examination of Alzheimer's disease through the general public, formal and informal caregivers, general practitioners and sick people.</abstract>
    <abstract contentType="abstract">null</abstract>
    <sumDscr>
      <collDate event="start" date="2008-01-01"/>
      <collDate event="end" date="2013-01-01"/>
      <nation abbr="fr">
                    France
                                            <concept vocab="ISO" vocabURI="fr"/>
                                    </nation>
      <geogUnit/>
      <anlyUnit>
                Individuals            </anlyUnit>
      <universe level="type" clusion="I">General population                    </universe>
      <universe level="sex" clusion="I">Male                                                            <concept vocab="MeSH" vocabURI="http://id.nlm.nih.gov/mesh/D008297"/>
                                                    </universe>
      <universe level="sex" clusion="I">Female                                                            <concept vocab="MeSH" vocabURI="http://id.nlm.nih.gov/mesh/D005260"/>
                                                    </universe>
      <universe level="age" clusion="I">Young Adult (19 to 24 years)                                                            <concept vocab="MeSH" vocabURI="http://id.nlm.nih.gov/mesh/D055815"/>
                                                    </universe>
      <universe level="age" clusion="I">Adult (25 to 44 years)                                                            <concept vocab="MeSH" vocabURI="http://id.nlm.nih.gov/mesh/D000328"/>
                                                    </universe>
      <universe level="age" clusion="I">Middle Aged (45 to 64 years)                                                            <concept vocab="MeSH" vocabURI="http://id.nlm.nih.gov/mesh/D008875"/>
                                                    </universe>
      <universe level="age" clusion="I">Aged (65 to 79 years)                                                            <concept vocab="MeSH" vocabURI="http://id.nlm.nih.gov/mesh/D000368"/>
                                                    </universe>
      <universe level="age" clusion="I">Aged, 80 and over (80 years and more)                                                            <concept vocab="MeSH" vocabURI="http://id.nlm.nih.gov/mesh/D000369"/>
                                                    </universe>
      <universe clusion="I">The system combines qualitative approaches, which are designed to go into perceptions in depth, expectations and needs of the target audiences, as well as quantitative methodologies that provide quantified indicators and track them over time. It includes eight surveys and studies conducted between 2008 and 2013. Further information on the inclusion criteria on the dedicated website: http://alzheimer.inpes.fr                    </universe>
      <dataKind>Participant-reported health data</dataKind>
    </sumDscr>
    <qualityStatement>
      <otherQualityStatement>Using polling institutes with their own quality labels (BVA</otherQualityStatement>
      <otherQualityStatement>Ifop</otherQualityStatement>
      <otherQualityStatement>Ipsos</otherQualityStatement>
      <otherQualityStatement>GFK-SLI)</otherQualityStatement>
    </qualityStatement>
  </stdyInfo>
  <studyDevelopment>
    <developmentActivity type="primary evaluation">
      <description>Health event/morbidity
Health care consumption and services
Quality of life/health perception</description>
    </developmentActivity>
  </studyDevelopment>
  <method>
    <dataColl>
      <sampProc>Other                                                            <concept vocab="CESSDA" vocabURI="Other"/>
                                                    </sampProc>
      <sampleFrame>
        <frameUnit>
          <unitType>Through independent healthcare practitioners Through organizations (health services or institutions</unitType>
        </frameUnit>
        <frameUnit>
          <unitType>schools</unitType>
        </frameUnit>
        <frameUnit>
          <unitType>businesses</unitType>
        </frameUnit>
        <frameUnit>
          <unitType>etc.) Population database for statistical purposes Administrative database (employees</unitType>
        </frameUnit>
        <frameUnit>
          <unitType>pupils</unitType>
        </frameUnit>
        <frameUnit>
          <unitType>students</unitType>
        </frameUnit>
        <frameUnit>
          <unitType>etc.) Medical-administrative database (patients</unitType>
        </frameUnit>
        <frameUnit>
          <unitType>health insurance/mutual insurance)</unitType>
        </frameUnit>
      </sampleFrame>
      <targetSampleSize>
        <sampleSizeFormula>[10000-20000[ individuals                        </sampleSizeFormula>
      </targetSampleSize>
      <collMode>Interview with the participant (including clinical)                                                            <concept vocab="CESSDA" vocabURI="Interview"/>
                                                    </collMode>
    </dataColl>
    <notes>Observational Study</notes>
    <notes subject="research type">
                        Observational Study                    </notes>
    <anlyInfo>
      <respRate>4,500 from the general population, 161 sick people, 305 caregivers, 1,500 health-care professionals</respRate>
    </anlyInfo>
    <stdyClas>Unknown</stdyClas>
  </method>
  <dataAccs>
    <setAvail>
      <avlStatus>
                            Restricted access                                                    </avlStatus>
    </setAvail>
    <useStmt>
      <conditions>The databases are made available upon request and after signature of an agreement with INPES (Stata and Spss)</conditions>
    </useStmt>
  </dataAccs>
  <othrStdyMat>
    <relMat>Access on specific project only</relMat>
  </othrStdyMat>
</stdyDscr>
<dataDscr>
</dataDscr></codeBook>
