Cross-sectional Handicap-Health study - Informal caregivers FRESH-PEF73098-en Delphine ROY Cross-sectional Handicap-Health study - Informal caregivers HSA FRESH-PEF73098-en 73098 FRESH-PEF73098 Noémie SOULLIER MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES INSTITUT NATIONAL DE LA STATISTIQUE ET DES ETUDES ECONOMIQUES (INSEE) Epidemiology France Portal (PEF) MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES null Informal caregivers family and friends aid living conditions dependence health handicap quality of life Behavioral determinants Socio-demographic and economic determinants The principal objective of the "Informal caregivers" survey is to characterise non-professional caregivers (family, friends, neighbours, etc.) for individuals who have stated that they have trouble performing certain daily activities due to a handicap, a health problem or their age in the 2008 Handicap-Health survey. Conducted from April to September 2008, the survey includes 5,000 informal caregivers of handicapped individuals and dependent elderly individuals. This survey allows for the description and analysis of the living conditions and quality of life of individuals providing support to individuals they are close with (family, neighbours, friends, etc.) who stated that they have trouble in activities of daily life in the Handicap-Health survey in ordinary households in 2008 (handicapped or elderly individuals). It addresses an interest identified in the recent public debate (conference on Family in 2006, decree dated January 2007 allowing the arrangement of the right to respite for family caregivers ), and addresses the initial questions from the Handicap-Health survey. It allows for knowledge of the motivations and manifestations of informal support, description and analysis of living conditions and quality of life of caregivers and the manner in which non-professional aid connects or does not connect with aid provided by professionals. The survey also allows for the detailed measurement of the consequences of aid on the daily life of the caregivers, on the professional, family and friendship plans. The general objective of the survey can be broken down into five sub-objectives: to create a portrait of caregivers from the social network, to gain knowledge of the configuration of aid and the conditions under which it is provided, to see how the caregiver's activity is reconciled with that of other caregivers, to understand the consequences of aid and the resulting needs, and lastly to gain knowledge of the representations that the caregivers have regarding their economic consent to the aid provided. null France Individuals People with disabilities Male Female Young Adult (19 to 24 years) Adult (25 to 44 years) Middle Aged (45 to 64 years) Aged (65 to 79 years) Aged, 80 and over (80 years and more) The survey sample is made up of all of the caregivers named in the 2008 Handicap-Health survey, 16 years of age and older. The "Informal caregivers" survey is a supplemental section of the Handicap-Health survey in ordinary households conducted by Insee in 2008: when a person indicates in the Handicap-Health survey that he or she is aided by one or more non-professional caregivers, a quick description of the caregiver and the nature of the aid that he or she provides is requested from the surveyed individual. The contact information for the caregiver (or caregivers) is also collected (with a maximum of 3 cohabitating caregivers and 10 caregivers per surveyed individual): they constitute the sampling frame for the "Informal caregivers" survey. The "Informal caregivers" study is limited to individuals 16 years of age or older. The individuals are questioned directly face to face by an Insee surveyor. Participant-reported health data Health event/morbidity Health care consumption and services Quality of life/health perception One-time cross-sectional study Other Other [1000-10000[ individuals Converting or copying information into a structured record Interview with the participant (including clinical) Observational Study Observational Study 5 000 Completed study To be defined Access on specific project only