{"doc_desc":{"title":"Etude transversale Handicap-Sant\u00e9 - Aidants informels","idno":"FRESH-PEF73098-fr","producers":[{"name":"Delphine ROY","affiliation":"DIRECTION DE LA RECHERCHE DES ETUDES DE L'EVALUATION ET DES STATISTIQUES (DREES)"}]},"study_desc":{"title_statement":{"idno":"FRESH-PEF73098-fr","IDno":{"metadata_no":[{"agency":"PEF","code":"73098"},{"agency":"FReSH","code":"FRESH-PEF73098"}]},"title":"Etude transversale Handicap-Sant\u00e9 - Aidants informels","alternate_title":"HSA"},"study_authorization":{"agency":[{"name":"CNIL"}]},"authoring_entity":[{"name":"No\u00e9mie;SOULLIER","firstname":"No\u00e9mie","lastname":"SOULLIER","type":"investigator","extlink":[{"title":"ROR","uri":"https:\/\/ror.org\/01wp0c315","role":"organisation id"},{"title":"SIREN","uri":"130016546","role":"organisation id"}],"email":"","affiliationName":"MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES","PILabo":"DREES","isContact":false}],"oth_id":[{"name":"CNAF CNAV CNSA","type":"collaboration"}],"production_statement":{"prod_place":"Portail Epid\u00e9miologie France (PEF)","producers":[{"name":"MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES","extlink":[{"title":"ROR","uri":"https:\/\/ror.org\/01wp0c315","role":"sponsor id"},{"title":"SIREN","uri":"130016546","role":"sponsor id"}],"role":"sponsor"},{"name":"INSTITUT NATIONAL DE LA STATISTIQUE ET DES ETUDES ECONOMIQUES (INSEE)","extlink":[{"title":"ROR","uri":"https:\/\/ror.org\/03v6yxf25","role":"sponsor id"},{"title":"SIREN","uri":"120027016","role":"sponsor id"}],"role":"sponsor"}],"funding_agencies":[{"name":"MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES","extlink":[{"title":"ROR","uri":"https:\/\/ror.org\/01wp0c315"},{"title":"SIREN","uri":"130016546"}]}]},"distribution_statement":{"contact":[{"name":"","type":"contact"}]},"study_info":{"keywords":[{"keyword":"Aidants informels"},{"keyword":"aide. condition de vie"},{"keyword":"d\u00e9pendance"},{"keyword":"sant\u00e9"},{"keyword":"handicap"},{"keyword":"qualit\u00e9 de vie"},{"keyword":"entourage"}],"topics":[{"topic":"Syst\u00e8mes de soins et acc\u00e8s aux soins","vocab":"health determinant"},{"topic":"D\u00e9terminants comportementaux","vocab":"health determinant"},{"topic":"D\u00e9terminants socio-d\u00e9mographiques et \u00e9conomiques","vocab":"health determinant"}],"purpose":"L\u2019objectif principal de l\u2019enqu\u00eate \u2019Aidants informels\u2019 est de caract\u00e9riser les aidants non professionnels (famille, amis, voisins, etc.) de personnes ayant d\u00e9clar\u00e9 dans l\u2019enqu\u00eate Handicap-Sant\u00e9 2008 avoir des difficult\u00e9s \u00e0 r\u00e9aliser certains actes de la vie quotidienne en raison d\u2019un handicap, d\u2019un probl\u00e8me de sant\u00e9 ou de leur \u00e2ge. R\u00e9alis\u00e9e d\u2019avril \u00e0 septembre 2008, l\u2019enqu\u00eate porte sur 5 000 aidants informels de personnes handicap\u00e9es et de personnes \u00e2g\u00e9es d\u00e9pendantes. Cette enqu\u00eate permet de d\u00e9crire et d\u2019analyser les conditions et la qualit\u00e9 de vie des personnes apportant leur soutien \u00e0 des proches de l\u2019entourage (famille, voisins, amis, ...) ayant d\u00e9clar\u00e9 avoir des difficult\u00e9s dans les actes de la vie quotidienne dans l\u2019enqu\u00eate Handicap-Sant\u00e9 en m\u00e9nages ordinaires en 2008 (personnes handicap\u00e9es ou \u00e2g\u00e9es). Elle r\u00e9pond \u00e0 un int\u00e9r\u00eat soulign\u00e9 dans le d\u00e9bat public r\u00e9cent (conf\u00e9rence de la Famille en 2006, d\u00e9cret de janvier 2007 permettant d\u2019organiser un droit de r\u00e9pit aux aidants familiaux), et r\u00e9pond aux interrogations initiales de l\u2019enqu\u00eate Handicap-Sant\u00e9. Elle permet de conna\u00eetre les motivations et les manifestations du soutien informel, de d\u00e9crire et d\u2019analyser les conditions et la qualit\u00e9 de vie des aidants et la fa\u00e7on dont l\u2019aide non professionnelle s\u2019articule ou non avec une aide apport\u00e9e par des professionnels. L\u2019enqu\u00eate permet \u00e9galement de mesurer de fa\u00e7on d\u00e9taill\u00e9e les r\u00e9percussions de l\u2019aide sur la vie quotidienne des aidants, sur le plan professionnel, familial, amical. L\u2019objectif g\u00e9n\u00e9ral de l\u2019enqu\u00eate peut \u00eatre d\u00e9compos\u00e9 en cinq sous-objectifs : dresser un portrait des aidants de l\u2019entourage, conna\u00eetre la configuration de l\u2019aide et les conditions de son exercice, voir comment l\u2019activit\u00e9 de l\u2019aidant se concilie avec celle des autres aidants, saisir les cons\u00e9quences de l\u2019aide et les besoins qui en d\u00e9coulent et enfin conna\u00eetre les repr\u00e9sentations que les aidants ont sur leur consentement \u00e9conomique vis-\u00e0-vis de l\u2019aide fournie.","abstract":"","coll_dates":[{"start":"2008-01-01","end":"2008-12-31"}],"nation":[{"name":"France","abbreviation":"fr","extLink":{"vocab":"ISO","vocabURI":"fr"}}],"geog_coverage":"","analysis_unit":"Individus","universe":"{\n    \"level_sex_clusion_I\": [\n        {\n            \"value\": \"Masculin\",\n            \"concept\": {\n                \"vocab\": \"MeSH\",\n                \"vocabURI\": \"http:\\\/\\\/id.nlm.nih.gov\\\/mesh\\\/D008297\"\n            }\n        },\n        {\n            \"value\": \"F\u00e9minin\",\n            \"concept\": {\n                \"vocab\": \"MeSH\",\n                \"vocabURI\": \"http:\\\/\\\/id.nlm.nih.gov\\\/mesh\\\/D005260\"\n            }\n        }\n    ],\n    \"level_age_clusion_I\": [\n        {\n            \"value\": \"Adolescence (13 \u00e0 18 ans)\",\n            \"concept\": {\n                \"vocab\": \"MeSH\",\n                \"vocabURI\": \"http:\\\/\\\/id.nlm.nih.gov\\\/mesh\\\/D000293\"\n            }\n        },\n        {\n            \"value\": \"Adulte (19 \u00e0 24 ans)\",\n            \"concept\": {\n                \"vocab\": \"MeSH\",\n                \"vocabURI\": \"http:\\\/\\\/id.nlm.nih.gov\\\/mesh\\\/D055815\"\n            }\n        },\n        {\n            \"value\": \"Adulte (25 \u00e0 44 ans)\",\n            \"concept\": {\n                \"vocab\": \"MeSH\",\n                \"vocabURI\": \"http:\\\/\\\/id.nlm.nih.gov\\\/mesh\\\/D000328\"\n            }\n        },\n        {\n            \"value\": \"Adulte (45 \u00e0 64 ans)\",\n            \"concept\": {\n                \"vocab\": \"MeSH\",\n                \"vocabURI\": \"http:\\\/\\\/id.nlm.nih.gov\\\/mesh\\\/D008875\"\n            }\n        },\n        {\n            \"value\": \"Personne \u00e2g\u00e9e (65 \u00e0 79 ans)\",\n            \"concept\": {\n                \"vocab\": \"MeSH\",\n                \"vocabURI\": \"http:\\\/\\\/id.nlm.nih.gov\\\/mesh\\\/D000368\"\n            }\n        },\n        {\n            \"value\": \"Grand \u00e2ge (80 ans et plus)\",\n            \"concept\": {\n                \"vocab\": \"MeSH\",\n                \"vocabURI\": \"http:\\\/\\\/id.nlm.nih.gov\\\/mesh\\\/D000369\"\n            }\n        }\n    ],\n    \"level_type_clusion_I\": \"Personnes en situation de handicap\",\n    \"level_type_clusion_other\": \"\",\n    \"clusion_I\": \"L\u2019\u00e9chantillon de l\u2019enqu\u00eate est constitu\u00e9 \u00e0 partir de l\u2019ensemble des aidants d\u00e9sign\u00e9s dans l\u2019enqu\u00eate Handicap-Sant\u00e9 2008, de 16 ans et plus.       L\u2019enqu\u00eate \u00ab Aidants informels \u00bb est un volet compl\u00e9mentaire de l\u2019enqu\u00eate Handicap-Sant\u00e9 en m\u00e9nages ordinaires r\u00e9alis\u00e9e par l\u2019Insee en 2008 : lorsqu\u2019une personne indique dans le cadre de l\u2019enqu\u00eate Handicap-Sant\u00e9 qu\u2019elle est aid\u00e9e par un (des) aidant(s) non professionnel(s), une rapide description de l\u2019aidant et de la nature de l\u2019aide qu\u2019il apporte est demand\u00e9e \u00e0 la personne enqu\u00eat\u00e9e.      Les coordonn\u00e9es de l\u2019aidant (ou des aidants) sont \u00e9galement collect\u00e9es (dans la limite de 3 aidants cohabitants et de 10 aidants au maximum par personne enqu\u00eat\u00e9e) : elles constituent la base de sondage de l\u2019enqu\u00eate \u00ab Aidants informels \u00bb.      L\u2019enqu\u00eate \u00ab Aidants informels \u00bb se limite aux personnes de 16 ans et plus. Les personnes sont interrog\u00e9es directement en face-\u00e0-face par un enqu\u00eateur de l\u2019Insee.\",\n    \"clusion_E\": \"\"\n}","data_kind":"['Donn\u00e9es rapport\u00e9es par le participant de l'\u00e9tude']","quality_statement":{"standards":[{"name":"","committee":"","governance":""}],"other_quality_statement":""}},"study_development":{"development_activity":[{"activity_type":"primary evaluation","activity_description":"Ev\u00e9nements de sant\u00e9\/morbidit\u00e9\r\nConsommation de soins\/services de sant\u00e9\r\nQualit\u00e9 de vie\/sant\u00e9 per\u00e7ue"}]},"method":{"data_collection":{"time_method":"Etude transversale non r\u00e9p\u00e9t\u00e9e","frequency":"","sampling_procedure":"['{\"concept\":{\"vocabURI\":\"Other\",\"vocab\":\"CESSDA\"},\"value\":\"Autre\"}']","sample_frame":{"frame_unit":{"unit_type":"['Autre']"}},"coll_mode":["{\"concept\":{\"vocabURI\":\"Transcription\",\"vocab\":\"CESSDA\"},\"value\":\"Transcription et saisie d\u2019informations dans un enregistrement structur\u00e9\"}","{\"concept\":{\"vocabURI\":\"Interview\",\"vocab\":\"CESSDA\"},\"value\":\"Entretien avec le participant (dont clinique)\"}"],"research_instrument":"Acc\u00e8s restreint sur projet sp\u00e9cifique","sources":[],"target_sample_size":"[1000-10000[ individus","response_rate":"5 000"},"method_notes":"Etude observationnelle","study_class":"\u00c9tude compl\u00e9t\u00e9e","notes":[{"subject":"research type","values":["Etude observationnelle"]}]},"data_access":{"dataset_availability":{"access_place":"","complete":"","status":"{\"value\":\"A d\u00e9finir\",\"extLink\":[]}"},"dataset_use":{"restrictions":"","conditions":"","conf_dec":[{"txt":""}],"spec_perm":[{"txt":"","required":""}],"contact":[{"name":""}],"deposit_req":"","cit_req":""},"notes":""}},"additional":{"IsImport":true,"versionLang":"fr","originLang":"fr","autoTranslation":false,"status":"imported","creationDate":"26-05-2015","lastUpdatedAuto":null,"lastUpdatedManual":"01-01-2018","isContributorPI":false,"contributorName":"","contributorAffiliation":"","addTeamMember":"","obtainedAuthorization":{"otherAuthorizingAgency":[""]},"relatedDocument":[{"type":"","title":"","link":"http:\/\/www.drees.sante.gouv.fr\/les-enquetes-handicap-sante,4267.html#sommaire_article"}],"regulatoryRequirements":{"conformityDeclaration":""},"fundingAgent":{"fundingAgentType":["Public (France)"],"otherFundingAgentType":[""]},"sponsor":{"sponsorType":["Public (France)","Public (France)"],"otherSponsorType":["",""]},"governance":{"committee":""},"collaborations":{"networkConsortium":true},"theme":{"complementaryInformation":"","RareDiseases":""},"activeFollowUp":{"isActiveFollowUp":false,"followUpModeOther":""},"interventionalStudy":{"researchPurpose":[],"trialPhase":[],"interventionalStudyModel":"","isClinicalTrial":"","otherResearchPurpose":""},"isInclusionGroups":"","allocation":{"allocationMode":"","allocationUnit":""},"masking":{"maskingType":"","blindedMaskingDetails":[]},"arms":[],"intervention":[],"inclusionGroups":[],"collectionProcess":{"collectionModeDetails":"","collectionModeOther":""},"dataCollection":{"inclusionStrategyOther":"","samplingModeOther":"","recruitmentSourceOther":"","otherDocumentation":""},"dataCollectionIntegration":{"isDataIntegration":false},"geographicalCoverage":{"geoDetail":"France"},"dataTypes":{"clinicalDataDetails":"","biologicalDataDetails":"","isDataInBiobank":false,"biobankContent":[],"biobankContentOther":"","dataTypeOther":""},"variableDictionnary":{"variableDictionnaryAvailable":"","variableDictionnaryLink":""},"dataQuality":{"otherDocumentation":""},"mockSample":{"mockSampleAvailable":"","mockSampleLocation":""},"thirdPartySource":{"otherSourceType":[]},"isHealthTheme":false,"fileDscr":{"fileTxt":{"fileCitation":{"titlStmt":{"IDno":[]}}}}},"schematype":"survey"}