Epidemiology Network and Nephrology Information Registry (qualified registry 2012-2015) FRESH-PEF5623-en Christian JACQUELINET Epidemiology Network and Nephrology Information Registry (qualified registry 2012-2015) REIN FRESH-PEF5623-en 5623 FRESH-PEF5623 Christian JACQUELINET AGENCE DE LA BIOMEDECINE Epidemiology France Portal (PEF) null Cécile;COUCHOUD Christian;JACQUELINET Data interpretation decision epidemiological expertise biostatistics transplanted or dialysis patients rate of mortality and progression comorbidities associated disabilities incidence prevalence sociodemographic characteristics support Nephrology Kidney failure Socio-demographic and economic determinants Biological determinants: Genetic predisposition Environmental determinants: Other Behavioral determinants Biological determinants Environmental determinants To establish a sustainable information system by unifying data, its interpretation and potential use for public health decision-making or clinical practice for all partners involved (network organisation) and to organise epidemiological knowledge, biostatistics and data necessary to: - Estimate the number of dialysis or transplant patients for chronic renal disease in France and overseas territories, - Assess the impact (Objective 80 of Public Health Law), prevalence, mortality rates and trends in chronic renal disease at regional level, patient sociodemographic characteristics, baseline renal disease, comorbidities and associated disabilities - Specifically describe dialysis treatment modalities (method, modality, dose) and changing tendencies towards population requirements and medical practices - Evaluate relative aspects of different dialysis and transplantation modalities and to describe patient trajectories through these treatment modalities - Assess quality and efficacy of care in terms of early detection, dialysis dose, control of anaemia and nutritional balance, particularly with regard to good clinical practice - Evaluate patients' quality of life (Objective 81 of Public Health Law); - Evaluate the medical and economic outcomes of health care practices. null France Individuals Patients population Male Female Infant, Newborn (birth to 28 days) Infant (28 days to 2 years) Child, Preschool (2 to 5 years) Child (6 to 12 years) Young Adult (19 to 24 years) Adult (25 to 44 years) Middle Aged (45 to 64 years) Aged (65 to 79 years) Aged, 80 and over (80 years and more) Initiation of treatment (dialysis or transplant) for End-Stage Renal Disease (ESRD). Clinical data Biological data Socio-demographic data Health event/morbidity Health event/mortality Other >= 20000 individuals Recording (audio, video, electrophysiological, imaging) Observational Study Observational Study Morbidity registry Au 31/12/2012 : 90685- 10048 nouveaux cas- 73491 patients traités- 7146 décès Unknown Restricted access Access on specific project only