<?xml version="1.0" encoding="UTF-8"?>
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<docDscr>
  <citation>
    <titlStmt>
      <titl>Lille Stroke Registry (qualified registry)</titl>
      <IDNo>FRESH-PEF55-en</IDNo>
    </titlStmt>
    <prodStmt>
      <producer abbr="" affiliation="UNIVERSITE DE LILLE" role="">Philippe AMOUYEL</producer>
    </prodStmt>
    <verStmt>
      <version></version>
    </verStmt>
  </citation>
</docDscr>
<stdyDscr>
  <citation>
    <titlStmt>
      <titl>
                Lille Stroke Registry (qualified registry)            </titl>
      <IDNo agency="FReSH-lang">
                FRESH-PEF55-en            </IDNo>
      <IDNo agency="PEF">
                    55                </IDNo>
      <IDNo agency="FReSH">
                    FRESH-PEF55                </IDNo>
    </titlStmt>
    <rspStmt>
      <AuthEnty>
                    Philippe AMOUYEL                                                                                                                            </AuthEnty>
      <AuthEnty affiliation="UNIVERSITE DE LILLE">
        <ExtLink title="ROR" URI="https://ror.org/02kzqn938" role="organisation id"/>
        <ExtLink title="SIREN" URI="130029754" role="organisation id"/>
      </AuthEnty>
      <AuthEnty>
                    Jean DALLONGEVILLE                                                                                                                            </AuthEnty>
      <AuthEnty affiliation="UNIVERSITE DE LILLE">
        <ExtLink title="ROR" URI="https://ror.org/02kzqn938" role="organisation id"/>
        <ExtLink title="SIREN" URI="130029754" role="organisation id"/>
      </AuthEnty>
      <othId affiliation="" type="">
                                    </othId>
    </rspStmt>
    <prodStmt>
      <producer role="sponsor">
                                            INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM)                    
                                    </producer>
      <producer role="sponsor">
                                            UNIVERSITE DE LILLE                    
                                    </producer>
      <producer role="sponsor">
                                            INSTITUT PASTEUR DE LILLE                    
                                    </producer>
      <prodPlac>
                Epidemiology France Portal (PEF)            </prodPlac>
      <fundAg>
                                            INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM)                    
                                    </fundAg>
    </prodStmt>
    <distStmt>
      <distrbtr abbr="null">
                    null</distrbtr>
      <contact affiliation="UNIVERSITE DE LILLE" email="philippe.amouyel@pasteur-lille.fr">
                    Philippe;AMOUYEL
                                            <ExtLink title="ROR" URI="https://ror.org/02kzqn938" role="organisation id"/>
                                            <ExtLink title="SIREN" URI="130029754" role="organisation id"/>
                                    </contact>
      <contact affiliation="UNIVERSITE DE LILLE" email="jean.dallongeville@pasteur-lille.fr">
                    Jean;DALLONGEVILLE
                                            <ExtLink title="ROR" URI="https://ror.org/02kzqn938" role="organisation id"/>
                                            <ExtLink title="SIREN" URI="130029754" role="organisation id"/>
                                    </contact>
      <depDate date="2026-06-17"/>
      <distDate date="2026-06-17"/>
    </distStmt>
    <biblCit format="">
            </biblCit>
    <holdings URI="null"/>
    <notes> </notes>
  </citation>
  <stdyInfo>
    <studyBudget/>
    <subject>
      <keyword vocab="" vocabURI="">
                    Neurovascular</keyword>
      <topcClas vocab="health theme">
                        Neurology                                                        <ExtLink title="ESV" URI="http://data.europa.eu/8mn/euroscivoc/c4793dfe-e80e-49dd-9fcc-a1a742de1b25"/>
                                                            <ExtLink title="ESV" URI="http://data.europa.eu/8mn/euroscivoc/00a5c4f4-b7ee-41a4-bcdf-3a02e6be1660"/>
                                                            <ExtLink title="MeSH" URI="http://id.nlm.nih.gov/mesh/D009462"/>
                                                </topcClas>
      <topcClas vocab="health determinant">
                        Environmental determinants: Other                    </topcClas>
      <topcClas vocab="health determinant">
                        Environmental determinants                    </topcClas>
    </subject>
    <abstract contentType="purpose">1) Produce indicators for stroke - Incidence rate - Occurrence rate - Incidence rate for hospitalized - Occurrence rate for hospitalized - 28-day survival rate - Death rate 2) Develop a research program on the prognosis and the care of stroke in collaboration with the other neurovascular and coronary registers, as well as with the neurological teams of the CHRU (University Research Hospital) of Lille 3) Transmit the specific information and calculations as requested by the DDASS, DRASS and any partner that may be interested by the data on CVAs in France</abstract>
    <abstract contentType="abstract">null</abstract>
    <sumDscr>
      <collDate event="start" date="2008-01-01"/>
      <collDate event="end" date="2016-01-01"/>
      <nation abbr="fr">
                    France
                                            <concept vocab="ISO" vocabURI="fr"/>
                                    </nation>
      <geogCover>Hauts-de-France</geogCover>
      <geogUnit/>
      <anlyUnit>
                Individuals            </anlyUnit>
      <universe level="type" clusion="I">General population                    </universe>
      <universe level="sex" clusion="I">Male                                                            <concept vocab="MeSH" vocabURI="http://id.nlm.nih.gov/mesh/D008297"/>
                                                    </universe>
      <universe level="sex" clusion="I">Female                                                            <concept vocab="MeSH" vocabURI="http://id.nlm.nih.gov/mesh/D005260"/>
                                                    </universe>
      <universe level="age" clusion="I">Young Adult (19 to 24 years)                                                            <concept vocab="MeSH" vocabURI="http://id.nlm.nih.gov/mesh/D055815"/>
                                                    </universe>
      <universe level="age" clusion="I">Adult (25 to 44 years)                                                            <concept vocab="MeSH" vocabURI="http://id.nlm.nih.gov/mesh/D000328"/>
                                                    </universe>
      <universe level="age" clusion="I">Middle Aged (45 to 64 years)                                                            <concept vocab="MeSH" vocabURI="http://id.nlm.nih.gov/mesh/D008875"/>
                                                    </universe>
      <universe level="age" clusion="I">Aged (65 to 79 years)                                                            <concept vocab="MeSH" vocabURI="http://id.nlm.nih.gov/mesh/D000368"/>
                                                    </universe>
      <universe level="age" clusion="I">Aged, 80 and over (80 years and more)                                                            <concept vocab="MeSH" vocabURI="http://id.nlm.nih.gov/mesh/D000369"/>
                                                    </universe>
      <universe clusion="I">Notified health events: cerebrovascular accidents in adults aged 35 years and older Residents of the city of Lille, Lomme, Hellemmes                    </universe>
      <dataKind>Clinical data</dataKind>
      <dataKind>Socio-demographic data</dataKind>
    </sumDscr>
  </stdyInfo>
  <studyDevelopment>
    <developmentActivity type="primary evaluation">
      <description>Health event/morbidity
Health event/mortality</description>
    </developmentActivity>
  </studyDevelopment>
  <method>
    <dataColl>
      <sampProc>Other                                                            <concept vocab="CESSDA" vocabURI="Other"/>
                                                    </sampProc>
      <targetSampleSize>
        <sampleSizeFormula>[1000-10000[ individuals                        </sampleSizeFormula>
      </targetSampleSize>
      <collMode>Other                                                            <concept vocab="CESSDA" vocabURI="Other"/>
                                                    </collMode>
    </dataColl>
    <notes>Observational Study</notes>
    <notes subject="research type">
                        Observational Study                    </notes>
    <notes subject="observational study method">
                        Morbidity registry                    </notes>
    <anlyInfo>
      <respRate>350 (in 2010)</respRate>
    </anlyInfo>
    <stdyClas>Unknown</stdyClas>
  </method>
  <dataAccs>
    <setAvail>
      <avlStatus>
                            Restricted access                                                    </avlStatus>
    </setAvail>
  </dataAccs>
  <othrStdyMat>
    <relMat>Access on specific project only</relMat>
  </othrStdyMat>
</stdyDscr>
<dataDscr>
</dataDscr></codeBook>
