REGISTRY OF AUTOIMMUNE CYTOPENIAS IN FRANCE FRESH-PEF5294-en Guillaume MOULIS REGISTRY OF AUTOIMMUNE CYTOPENIAS IN FRANCE CARMEN-France FRESH-PEF5294-en 5294 FRESH-PEF5294 Guillaume MOULIS INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM) CENTRE HOSPITALIER UNIVERSITAIRE DE TOULOUSE (CHUT) Epidemiology France Portal (PEF) CENTRE HOSPITALIER UNIVERSITAIRE DE TOULOUSE (CHUT) CSL BEHRING S.A. NOVARTIS PHARMA SAS SOCIETE NATIONALE FRANCAISE DE MEDECINE INTERNE (SNFMI) null Guillaume;MOULIS immune thromboctyopenia autoimmune hemolytic anemia registry epidemiology pharmacoepidemiology Hematology Clinical immunology Immune thrombocytopenic purpura Acquired haemolytic anaemia, immune Healthcare system determinants: Use of care Healthcare system determinants Environmental determinants: Other Socio-demographic and economic determinants: Employment Socio-demographic and economic determinants To describe the epidemiology of immune thrombocytopenic purpura (ITP) and of autoimmune hemolytic anemia (AIHA), assess their mangement and provide RWE of their treatments in terms of effectiveness and safety null France Grand Est Nouvelle-Aquitaine Auvergne Rhône-Alpes Bourgogne Franche-Comté Bretagne Centre-Val de Loire Ile-de-France Occitanie Hauts-de-France Normandie Pays de la Loire Provence - Alpes - Côte d\'Azur Individuals Patients population Male Female Young Adult (19 to 24 years) Adult (25 to 44 years) Middle Aged (45 to 64 years) Aged (65 to 79 years) Aged, 80 and over (80 years and more) aged 18 or over - new diagnosis of ITP (since 2025, initiation of a maintenance treatment ofr ITP) or AIHA or initiaiton of a newly marketed drug in France for ITP or AIHA - no oppsition to participate Clinical data Participant-reported health data Biological data Remote data quality check for all patients on a core set of 100 variables; on-site monitoring done in 2023-2024 in centers in 10% of the database Health event/morbidity Health event/mortality Health care consumption and services Quality of life/health perception Other Through independent healthcare practitioners Through organizations (health services or institutions schools businesses etc.) [1000-10000[ individuals Self-administered questionnaire Converting or copying information into a structured record Observational Study Observational Study Morbidity registry Monitoring by contact with the participant (mail, e-mail, telephone etc.) 2832 on December 31, 2024 Ongoing study Restricted access Upon request, need the apprival by the scientific committee and the sponsor Access on specific project only