HOPE-Epidemiology - Epidemiological Research in Pediatric Hemato-Oncology FRESH-PEF3121-en Jacqueline CLAVEL HOPE-Epidemiology - Epidemiological Research in Pediatric Hemato-Oncology HOPE-EPI FRESH-PEF3121-en 3121 FRESH-PEF3121 Jacqueline CLAVEL INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM) Epidemiology France Portal (PEF) AGENCE NATIONALE DE LA RECHERCHE (ANR) null Jacqueline;CLAVEL national tools research infrastructure health events pediatric oncology environnemental and genetic risk factors social and territorial determinants iatrogenic effects of treatments Oncology Hematology Paediatrics Neoplasms Environmental determinants: Climate Socio-demographic and economic determinants Biological determinants: Genetic predisposition Environmental determinants: Other Healthcare system determinants: Use of care Environmental determinants Biological determinants Healthcare system determinants The objective of our project is to develop, from the existing national tools, a national research infrastructure pooling the work to collect data and validate information and health events in the service of an epidemiological research program in the field of pediatric oncology addressing : - the environnemental and genetic risk factors for childhood cancer, - the differences in management and their social and territorial determinants, - the iatrogenic effects of treatments, - and more generally, the state of health in the short-, intermediate- and long-term of people experiencing childhood cancer and the determinants of their quality of life. The project, closely connected with the pediatric oncology research of other disciplines, has, as a secondary objective, contributing to the sharing of data across disciplines. null France Individuals Patients population Male Female Infant, Newborn (birth to 28 days) Infant (28 days to 2 years) Child, Preschool (2 to 5 years) Child (6 to 12 years) Children aged less than 18 years with cancer Clinical data Biological data Socio-demographic data Paraclinical data (non-biological) : Imaging Health event/morbidity Health event/mortality Health care consumption and services Quality of life/health perception Other Population database for statistical purposes >= 20000 individuals Converting or copying information into a structured record Interview with the participant (including clinical) Observational Study Observational Study Cohort study 2010 : 170002020 : 35000 Unknown Restricted access Contact the principal investigator Access on specific project only