Future development of children suffering from congenital heart diseases : a study in Ile de France FRESH-PEF271-en Babak KHOSHNOOD Future development of children suffering from congenital heart diseases : a study in Ile de France EPICARD FRESH-PEF271-en 271 FRESH-PEF271 François GOFFINET Babak KHOSHNOOD Nathalie LELONG INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM) Epidemiology France Portal (PEF) ABBVIE AREM CAR INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE (INSERM) MINISTERE DU TRAVAIL, DE LA SANTE, DES SOLIDARITES ET DES FAMILLES SANTE PUBLIQUE FRANCE null François;GOFFINET Babak;KHOSHNOOD Nathalie;LELONG Prenatal diagnosis perinatal medicine pediatrics mortality morbidity development KABC Paediatrics Biological determinants: Genetic predisposition Biological determinants The objectives of the study are, from a cohort survey on a population of patients suffering from congenital heart diseases: 1) estimate the prevalence, the time of diagnosis, the medical and surgical care of congenital heart diseases infected newborns 2) Evaluate the mortality, the morbidity and future neural development of these children 3) Identify factors linked to short and long term prognosis, including the impact of the time of diagnosis, medical and surgical care of the children, as well as the role of the channels of health care, and socio-economic factors. null France Ile-de-France Individuals Patients population Male Female Infant, Newborn (birth to 28 days) Infant (28 days to 2 years) Child, Preschool (2 to 5 years) Child (6 to 12 years) Children (or fetus) suffering from congenital heart diseases detected in prenatal screening, at birth or during the first year of life, born (or interrupted) between 2005 and 2008, from mothers residents in Paris or inner suburbs (92, 93, 94 departments) Clinical data Participant-reported health data Health event/morbidity Health event/mortality Health care consumption and services Others Other [1000-10000[ individuals Interview with the participant (including clinical) Observational Study Observational Study Cohort study 2348 Unknown Restricted access Access to data with the accord fo the steering committee, priority to study participants Access on specific project only