Côte d'Or registry of hematological malignancies FRESH-PEF218-en Marc MAYNADIE Côte d'Or registry of hematological malignancies RHEMCO FRESH-PEF218-en 218 FRESH-PEF218 Marc MAYNADIE CENTRE HOSPITALIER UNIVERSITAIRE DE DIJON Epidemiology France Portal (PEF) INSTITUT NATIONAL DU CANCER (INCA) SANTE PUBLIQUE FRANCE null Marc;MAYNADIE public health surveillance evaluation Oncology Hematology Biological determinants: Genetic predisposition Environmental determinants: Other Healthcare system determinants: Use of care Behavioral determinants Biological determinants Environmental determinants Healthcare system determinants Objectives of the registry in terms of public health (surveillance, evaluation): 1) listing of all cases of hematological malignancies occurring in a well-defined population so as to provide the health and social authorities with precise data regarding the incidence, breakdown per gender, age range, geographical zone and socioprofessional category of these diseases; 2) recording of data on these cases makes it possible to evaluate different characteristics such as the stage of diagnosis, elements of the diagnosis and cancer staging report, therapy and survival; 3) a role to alert the public authorities in the rapid rise in incidence of certain pathologies and in the identification of the cause of this rise; 4) a role in improving the quality of data on hematological malignancies in the general cancer registries. - Objectives of the registry in terms of research; 1) in etiological epidemiology with the detection of environmental, personal and family risk factors of hematological malignancies; 2) in molecular epidemiology with the development of genetic or epigenetic research, 3) in pharmacological epidemiology with the development of therapies, their setting up, access to new therapies and their effect at population level on patient survival, the quality of this survival and the distant consequences of their use; 4) setup of tumor tissue collection null France Bourgogne Franche-Comté Individuals Patients population Male Female Infant, Newborn (birth to 28 days) Infant (28 days to 2 years) Child, Preschool (2 to 5 years) Child (6 to 12 years) Young Adult (19 to 24 years) Adult (25 to 44 years) Middle Aged (45 to 64 years) Aged (65 to 79 years) Aged, 80 and over (80 years and more) The cases recorded are malignant proliferations developed from cell types constituting the hematopoietic tissue diagnosed, in subjects living in the Côte d'Or département for more than 6 months Clinical data Biological data Socio-demographic data ICD-O-3 Health event/morbidity Health event/mortality Health care consumption and services Quality of life/health perception Other [1000-10000[ individuals Other Medico-administrative database Observational Study Observational Study Morbidity registry 1980-2004: 5087 Unknown Restricted access Regarding access to the registry's data, interested researchers may contact the scientific manager who will assess their requests. Access on specific project only